Argininosuccinic Aciduria Discussion Group

This is a discussion board for people dealing with. . .

Argininosuccinic Aciduria

Please feel free to post your questions, comments, or frustrations that you want to share with other families.

PLEASE NOTE any perspectives shared here are only opinions.

DO NOT MAKE ANY CHANGESin your child's treatment without first consulting your physician.

BE AWARE: information posted here might be monitored by unscrupulous entities (e.g., some health insurance companies).

Let's talk!!

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No Subject — Mark Stewart, Wed Sep 2 15:32

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L-Arginine suppliers — Annette, Sat Aug 22 22:35

Link to JoMar Labs — Holly, Thu Aug 27 04:12

L-arginine — Holly Thompson, Tue Aug 25 05:05

pills or powder — Annette, Wed Aug 26 09:13

arginine — Julie Scott, Thu Aug 27 18:46

arginine source — Julie Scott, Mon Aug 24 10:32

L-Arginine — Annette, Wed Aug 26 09:15

argininie — Jamie, Mon Aug 24 04:26

L-Arginine — Annette, Wed Aug 26 09:16

What about keppra? — Julie, Sat Jul 25 00:58

seizures and meds — Annette, Thu Jul 30 09:45

Re: What about keppra? — anne sutton, Sun Jul 26 09:18

test for tommorow — Julie, Mon Jul 20 00:29

Im afraid! — julie, Sat Jul 18 18:16

Seizures — Holly, Sun Jul 19 21:39

Re: Im afraid! — Clare Armstrong, Sun Jul 19 15:26

Re: I'm afraid! — Anne Sutton, Sun Jul 19 11:52

Houston in June — Amy, Fri Jun 12 22:27

Houston in June — Holly, Mon Jun 15 21:48

Re: Houston in June — Anonymous, Mon Jun 15 19:44

June Houston Trip — Amy, Tue Jun 16 23:17

limo — Pam Northrop, Fri Jun 19 09:53

Limo & Houston — Amy, Fri Jun 19 19:48

Houston — Pam, Sat Jun 20 19:01

company — Jamie Oliphint, Sun Jun 14 00:56

Houston Study — Anonymous, Fri Jun 5 05:58

houston study — Julie Scott, Sat Jun 6 05:09

Cyclinex 1 — Jade Strohm, Mon May 18 13:32

Re: Cyclinex 1 — Tammy Delisle, Thu Jun 4 08:20

Re: Cyclinex 1 — Jade, Fri Jun 5 20:16

cyclinex — kathy dougherty, Fri Jun 5 10:48

cyclinex1 — kathy dougherty, Mon Jun 1 12:33

cyclinex — Jade, Mon Jun 1 16:24

cyclinex — kathy dougerty, Mon Jun 1 17:55

Re: cyclinex — Jade, Wed Jun 3 13:55

thank you — kathy dougherty, Wed Jun 3 16:40

Re: cyclinex — Anonymous, Mon Jun 1 21:19

Re: Cyclinex 1 — Anonymous, Tue May 19 05:21

Cyclinex — Roxanne Lindquist, Thu Jun 11 15:30

Danielle — Annette, Fri May 15 10:22

Buphenyl — Amy, Mon May 18 21:15

Still in hospital — Annette, Sun May 17 08:41

High levels/appear fine — Clare, Mon May 18 02:40

levels adjusting — Annette, Wed May 20 23:41

High levels/appear fine — Clare, Mon May 18 02:44

Mystery Diagnosis — Amy, Mon May 4 13:19

Bike Riding Troubles — Amy, Mon Apr 20 18:46

Maia Rides a BIKE! — Amy, Wed May 6 14:25

Re: Maia Rides a BIKE! — Anne Sutton, Fri May 8 07:58

Yeah for Bike Riding! — jade strohm, Thu May 7 09:45

Jade...where are you — Jamie Oliphint, Fri May 8 03:58

Re: Jade...where are you — Jade Strohm, Sat May 9 18:22

YEAH! — Jamie, Thu May 7 04:20

Riding Bikes — Sandra, Thu May 7 01:00

bikes — Jamie Oliphint, Tue Apr 21 05:34

Re: Bike Riding Troubles — Clare, Tue Apr 21 01:42

Re: Bike Riding Troubles — Anne Sutton, Tue Apr 21 00:01

bike — Jason, Wed Apr 22 12:40

Re: bike — Clare, Thu Apr 23 11:43

Ethan — barb thomas, Thu Apr 16 10:50

Re: Ethan — Clare, Fri Apr 17 02:54

loss of speech — Bec, Wed Mar 18 20:55

Re: loss of speech — Clare, Sun Mar 22 06:09

Re: loss of speech — xx, Mon Mar 23 01:45

Re: loss of speech — Bec Ceumbley, Wed Mar 25 03:11

IV — Julie Scott, Tue Mar 24 03:40

Re: IV — Jennifer McElroy, Mon Apr 6 09:35

ataxia — Julie Scott, Tue Apr 14 09:13

Re: ataxia — Jennifer McElroy, Mon Apr 27 08:37

curious — Clare, Tue Mar 24 13:15

Re: loss of speech — Anne Sutton, Thu Mar 19 03:00

Buphenyl Study — Amy, Wed Mar 11 19:28

Study dates for Ashley — Holly, Wed Mar 11 22:49

let me know — Jamie Oliphint, Tue Mar 17 14:32

Help — Sarah Eagle, Tue Mar 3 23:05

ALP (Alkaline Phosphatase) — Sarah Eagle, Mon May 18 22:56

Re: Help — Anonymous, Sun Mar 22 06:40

Re: Help — Anonymous, Sat Mar 21 08:29

ALP — Sarah Eagle, Sat Mar 28 01:48

Re: Help — Anne Sutton, Thu Mar 19 03:06

Great news — Anne Sutton, Tue Feb 17 13:45

NEW BABY — Anonymous, Wed Feb 18 14:56

Congrats! — Amy, Wed Feb 18 11:36

Congratulations — Clare, Wed Feb 18 11:33

Congrats! — Jamie Oliphint, Wed Feb 18 04:20

Re: Congrats! — Anne Sutton, Wed Feb 18 08:57

great news — karen, Tue Feb 17 22:55

Need help! — Anonymous, Fri Feb 13 18:55

Need help — barb thomas, Tue Feb 17 14:27

Thanks — Anonymous, Wed Feb 18 14:54

Re: Need help! — Clare, Sat Feb 14 03:13

milk thistle — Barb Thomas, Fri Feb 6 09:56

milk thistle — Annette, Tue Feb 10 20:48

milk thistle — barb thomas, Wed Feb 11 09:29

Wish I was there — Jamie Oliphint, Tue Feb 10 21:34

milk thistle — karen, Sat Feb 7 08:52

milk thistle — barb thomas, Sun Feb 8 11:26

milk thistle — karen, Mon Feb 9 04:54

water — barb thomas, Tue Feb 10 10:21

Re: milk thistle — Clare, Tue Feb 10 02:50

milk thistle water — karen, Tue Feb 10 11:22

milk Thistle — jamie, Sat Feb 7 06:00

milk thistle — barb thomas, Sun Feb 8 11:20

of course — Jamie, Sun Feb 8 14:30

Milk thistle — Clare Armstrong, Sat Feb 7 03:18

For Clare — scsmith, Sun Feb 8 02:03

Medi honey — clare, Sun Feb 8 15:20

milk thistle — barb thomas, Sun Feb 8 11:31

milk thistle — barb thomas, Sat Feb 7 09:36

low potassium — Annette, Tue Feb 3 08:59

Re: low potassium — Jennifer McElroy, Thu Feb 12 06:36

Potassium — Janet Smith, Fri Feb 6 17:17

Low Potassium — Clare, Wed Feb 4 05:14

hair loss and blastocells — julie, Thu Jan 15 04:42

hair breakage — Annette, Fri Jan 16 22:23

Hair Loss — scsmith, Fri Jan 16 18:19

Hair Growth — Amy, Fri Jan 16 15:55

hair loss — Clare, Thu Jan 15 23:54

hair loss — Jamie, Thu Jan 15 21:37

Re: hair loss and blastocells — Jennifer McElroy, Thu Jan 15 10:40

Happy Holidays! — Annette, Sat Dec 27 09:06

L-arginine -the dose and how it is mixed — tammy, Tue Dec 30 06:59

arginine+hypermobility — Bec, Wed Dec 31 02:06

tests — Jamie, Tue Dec 30 21:37

Couple of questions — Anonymous, Tue Dec 30 18:47

Sodium Benzoate/Phenylbuterate — Janet Smith, Thu Jan 1 05:35

Janet — Beth Robinson, Fri Jan 2 06:13

to Beth — Janet Smith, Fri Jan 2 17:19

questions — Clare, Thu Jan 1 04:58

ASA kids in NSW — Bec, Thu Jan 1 21:46

Arginine, Lax ligaments & bloods — Clare, Mon Dec 29 13:04

Thanks Clare — jamie, Tue Dec 30 07:12

Re: Happy Holidays! — Sarah Eagle, Sun Dec 28 00:13

your questions — Jamie Oliphint, Sat Dec 27 22:27

Hyper Mobility — Sarah Eagle, Thu Dec 18 22:50

hyper mobility — Jamie, Thu Dec 25 22:01

Hyper mobility — Anne Sutton, Thu Dec 25 14:49

Bendy/Flat feet — Amy, Tue Dec 30 13:54

Re: Hyper mobility — Anonymous, Sun Dec 28 06:00

No Subject — Clare, Wed Dec 17 14:40

Re: No Subject — Anonymous, Wed Dec 24 07:25

Female Puberty — Amy, Tue Dec 30 13:50

Re: No Subject — Anonymous, Fri Dec 19 04:42

Re: No Subject — Anonymous, Wed Dec 24 07:18

puberty — Annette, Thu Dec 18 22:12

female puberty — Julie Scott, Thu Dec 18 04:50

Puberty — Holly, Thu Dec 18 04:46

ASA kids in Qld — Sandra, Wed Dec 10 02:26

Re: ASA kids in Qld — karen, Mon Dec 15 22:09

In USA, but Daughter is 9 — Amy, Mon Dec 15 20:43

Re: ASA kids in Qld — Anonymous, Sun Dec 14 19:57

seizure meds — Annette, Fri Oct 17 22:18

Re: seizure meds — Jennifer McElroy, Tue Oct 28 11:02

seizure meds and amino acids — Annette, Tue Oct 28 20:32

Re: seizure meds and amino acids — Clare, Thu Oct 30 01:56

Re: seizure meds and amino acids — Jennifer McElroy, Tue Oct 28 20:55

Re: seizure meds and amino acids — karen, Sat Nov 29 07:43

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