Discussion Board
Welcome to the discussion board of the International Still's Disease Foundation.Please list here any and all questions or topics which you would like to discuss concerning Still's Disease.
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supplements — Anonymous, Fri Nov 6 15:38
hello, new to stills and wondered whether anyone is taking supplements for the joint pain as reading many articles on the web about glucosamine has confused me. Some suggest it has do effect at all. Thankyou
treatment — Anonymous, Thu Nov 5 13:51
Hello, I have been diagnosed with Still's and would be grateful for any information on treatment. I have had a steriod jab today with the view to starting me on Azathioprine in Dec. I was given leaflets on two other possible treatment options which confused be really. these were Circlosporin and Hydroxychloroquin. Any ... more
- Re: Treatment/Anonymouse — Catherine, Fri Nov 6 00:40
symptoms — graymere, Wed Nov 4 00:42
I have had Still's for one year. It started with a stabbing pain in one ear,and unpleasant bowel motions. Each time I have a spike I get the same symptoms but the stabbing can be in one toe, or somewhere in my hand, anywhere really. If I over work or get stressed this seems to trigger the whole thing. The first attack ... more
Prednisone Alternatives — A, Tue Nov 3 04:16
My husband has been trying to taper off prednisone for some time now. He takes methotrexate, arava and planquenil however eventually he always ends up with a flare up. Unless he is on a high dose of prednisone (25mg - 30mg plus) he gets pain, lethargy etc. We have come to a point where it seems that he cannot exist... more
- Roid experiance — John, Sat Nov 7 02:39
- Re: — Marisa, Wed Nov 4 11:50
- Re: Prednisone Alternatives — Catherine, Wed Nov 4 01:14
Brother-in-Law with Stills — DownUnder, Tue Nov 3 03:07
I am hoping that there may be some other family members out there that can help me. My brother-in-law lives with my partner and I and he suffers from Stills. He was diagnosed several years ago but is experiencing a flare up at the moment. He has not told us about the level of pain he is in until recently. I understand ... more
- Brother-In-Law with Stills — A, Tue Nov 3 04:01
Appendix — maria, Mon Nov 2 22:50
Hello, My 23yr old son was recently diagnosed with Stills, and he had his appendix taken out when he was 15yrs. Can anyone tell me if they had their appendix taken out..I was told the appendix regulates bacteria and has something to do with our white count cells. I was wondering if there is any connection... Any info... more
Flu Shot — Dot, Sun Oct 25 01:16
I was told by my Rhumey to get a flu shot, it's been two days and I feel like I am fighting a flu. I hope i am ok and not that this didn't make matters worse for me! I need to buy a themomater and take my temp tomorrow. Has anyone ever felt this way after a fly shot? Thanks!
- Flu Shot — Tom, Fri Oct 30 15:40
- Re: Flu Shot — Dot, Mon Nov 2 23:24
- Re: Flu Shot — fr1045, Thu Oct 29 11:51
- Flu Shot — Dot, Mon Nov 2 23:27
high temps — ritak, Thu Oct 22 18:50
how long do you find the high temps last w/severe flareup?
- Length of Fevers — Tom, Tue Oct 27 23:48
- Re: Length of Fevers — rita, Thu Oct 29 18:24
Questions about the rash — Nic, Mon Oct 19 08:55
I had a bout of Stills years ago. Recently I developed a rash (feet / arms / legs etc etc). However, I never really had one when I had stills and this particular rash seems to stick around. Usually worse at night and fades into a blotchy looking thing in the am. My question is for people that have experience with the... more
- Rash — D., Thu Oct 29 09:25
- Re: Questions about the rash — Catherine, Tue Oct 20 00:37
- Re: Questions about the rash — Nic, Tue Oct 20 09:50
no diagnosis yet_male 39year old — Anonymous, Sun Oct 18 13:03
I'm a little frustrated and it looks as if others have gone thro the same thing re: problems with diagnosis. For about six months I have suffered from fatigue and aches and pains and in particular in the legs. About two months ago I started to get rashes on both legs which seem to get much worse into the evening. The... more
- no diagnosis — A, Mon Oct 19 07:06
New To Still's — CEE, Wed Oct 14 16:02
Hi, everyone I am a 36 year old man, and was diagnosed with Still's July of 2009. Prior to being diagnosed since May 2009,I have had all symptoms(High fevers 102 to 105, night sweats, chills, rash, body aches, muscle aches, joint pain, sore throat ect..). It was so bad I couldn't get up out of bed, it hurt to walk and ... more
- meds — rraskey65, Sat Oct 17 04:07
- prednisone — Arts, Thu Oct 15 12:04
- New to Still's — Margaret, Thu Oct 15 07:35
low dose naltrexone — Diane, Tue Oct 13 10:46
Hello eveyrone. I will be seeing my Rhuma later this month and she will no doubt want to put me on new meds. (taking 200mg/day of indomethacin now) Has anyone tried or researched low dose naltrexone? It has worked for people with MS and Chronic Fatigue. I was wondering if it could help with Still's.
new to this — Anonymous, Sun Oct 11 22:17
hello my name is Amber i have a 9 year old son who got diagnosed with stills disease in 2007 which took months to get the diagnosis after seeing different dr. 's and doing so many different tests they put hime on a taper of prednisone which worked great up until 3 weeks ago we thought he was cured then he started... more
- Re: new to this — Anonymous, Mon Nov 2 21:46
- Still's Disease Pamphlets — Tom, Thu Oct 29 21:12
- still's in children — molly, Wed Oct 21 00:09
- stills — rraskey65, Sat Oct 17 04:25
- Re: new to this — Shar, Wed Oct 14 13:38
- Re: new to this — Catherine, Tue Oct 13 11:59
- new to this — arts, Mon Oct 12 21:55
- New to this--suggestion — Margaret, Tue Oct 13 07:13
- Re: new to this — nidaga, Mon Oct 12 05:26
- Re: new to this — Anonymous, Thu Oct 22 09:19
- reply — Anonymous, Mon Oct 12 08:48
- RE: reply — nidaga, Wed Oct 14 06:52
New to this — jeniferhirsch, Sat Oct 10 02:54
Hello! I am so glad to have found this website and message board. I am 22, and I was recently diagnosed with AOSD after months of fevers, joint pain, pleurisy, and general feelings of fatigue and sickness. I am happy to finally have an answer, but it has been a long road already just getting to this point. I have been ... more
- Re: New to this — rraskey65, Wed Nov 4 00:33
- Re: New to this — rraskey65, Wed Nov 4 00:34
- Re: New to this — Anonymous, Mon Nov 2 22:05
- RE: New to this — nidaga, Mon Oct 12 05:38
- New to this — Catherine, Sun Oct 11 17:08
- Re: New to this — Dot, Tue Oct 13 20:35
- Dot - New to this — Catherine, Tue Oct 13 20:45
- Re: Dot - New to this — Dot, Tue Oct 13 21:15
Flu shot advice? — Margaret, Fri Oct 9 06:57
Thought it interesting for us to share the advice our Drs are giving r/t the current immunization controversies going on. My primary care and Rhumatologist at U of MI both warn against any of the live virus "flu mist" products but heartily endorse both flu shots esp. for anyone on pred. or any immunosupressant. What... more
- flu-shot — drock, Wed Oct 21 15:23
- U of M — rraskey65, Sat Oct 17 04:33
- Re: Flu shot advice? — Anonymous, Tue Oct 13 20:25
- RE: Flu shot advice? (Thank you) — nidaga, Mon Oct 12 05:50
SIMPONI — Steven N, Thu Oct 8 15:31
Hi all, I have been using Kineret for 5 years w/ good results but once a day injection is a pain, I just read of a new med called SIMPONI once a month injection by Schering-Plough Corporation & Centocor Ortho Biotech Inc. It is a TNFa, Has anyone tried it for Stills?
No Subject — Anonymous, Mon Oct 5 00:30
Has anyone been diagnosed with Iritis of the eye or eyes? I have been diagnosed almost 1yr 1/2 ago, and have had to steriod shots to my eye. Was wondering if anyone else has or have this? Dot
Surgery — A, Fri Oct 2 20:45
Hi All. It would appear that my husband requires surgery to remove a "hot" nodule on his thyroid gland. I am wondering if there could be a problem with the stills deciding to focus on the area that has been operated on or anything like that? Has anyone else had surgery that is unrelated to stills and is there is... more
What a mystery — Anonymous, Thu Oct 1 14:13
I just wanted to share my story in case others are seeking answers to theirs. It started nearly five years ago with a very high fever for over a week. I had upper abdominal pain that seemed to go from my liver to my spleen and then back again. I was exhausted and then developed a petechiae type of rash on my lower... more
- Hope Motherhood is enjoyable — Tom W, Fri Oct 2 16:07
Elbow Pain — Anonymous, Thu Oct 1 01:16
I've had stills for the last 20 something years. I was in remission for a year and just had a bad flare, now i'm on 20mgs pred. started at 60mg and i am experiencing elbow pain for some odd reason.. Has anyone experienced pain in your elbows? Thanks! Dot
- elbows and arms — Diana, Fri Oct 9 21:31
- Re: elbows and arms — dot, Tue Oct 13 20:39
- Elbow pain — Cyberdon, Fri Oct 2 05:19
- elbow pain — Margaret, Thu Oct 1 10:38
- Re: elbow pain — Anonymous, Thu Oct 1 11:03
- Not my Elbows — Tom W, Fri Oct 2 16:17
- Re: Not my Elbows — dot, Tue Oct 13 20:38
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