Message Board
Welcome to the discussion board of the International Still's Disease Foundation. Please list here any and all questions or topics which you would like to discuss concerning Still's Disease. PLEASE REPORT ANY OFFENSIVE POSTS TO gobulldawgs@comcast.net Please take a few seconds to enter your name, nickname or webname instead of ANON. Thank you. Search the Still's Disease Message Boardqualifying for disibility roxanne, Thu May 15 10:13
My Question is my uncle was just diagnosed with stills disease. I think he has the more sever case. He has been pretty much bed ridden for the last month. He is swollen all over and has high fevers and rashes. He use to work a full time job all of his life. Will he be able to qualify for disability?
Recently Diagnosed Libby, Wed May 14 09:12
Hi, I live in Sydney Australia and I was diagnosed in February with AOSD after spending two weeks in hospital. I originally thought it was called "Stills Disease" because the pain made it impossible to move, hence being "Still"!! I would like to know whether any other sufferers experience cramps in their feet and... more
- cramps Cricket, Wed May 14 23:34
- cramps and such Ellen, Thu May 15 01:02
- Thanks Libby, Thu May 15 10:30
Many troubles... Stacey, Tue May 13 22:23
I am currently in my second year of dealing with still's. I currently take hdroxychloroquine generic for paquenil(200mg 2x's a day), meloxicam generic for mobic(2.5mg 1x a day) and nortriptyline generic for pamelor(25mg one at night - and given to me for feeling I have in my feet - which is not working for me - i... more
- tingly toes Cricket, Wed May 14 23:52
- Many troubles--antidepressant Margaret, Wed May 14 21:50
- Many troubles Heathergirl, Wed May 14 19:12
- Carpal tunnel syndrome.. Cricket, Thu May 15 00:01
- Many troubles Ellen, Wed May 14 06:48
- Many troubles.... shannon, Wed May 14 06:37
- Prednisone Stacey, Wed May 14 13:39
Sore Throat / ulcers Martha's Dad, Tue May 13 06:07
Hi. I have had AOSD for two years.I have recently come off (mid April) prednisolone after dropping down to 2.5mg pday and have been on MTX at 12.5mg scince June 07 with no problems. I have had a terribly ulcerated throat/ back of mouth for about three weeks.Suffice to say that it hurts somewhat. Blood tests seem ok... more
- sore throat Ellen, Wed May 14 06:54
- sore throat/ulcers Debbie, Wed May 14 00:37
??? Sarah, Mon May 12 13:26
I am 31 years old now, but I spent about 5 months battling similar symptoms of stills disease when I was 14 years old. Eventually it just went away. I was a mystery case and was sent to specialists and stills was never mentioned. I have only heard of stills disease recently. Is there a possibility that it could return ... more
- ????? Heathergirl, Tue May 13 07:58
sleep dave in nebr, Wed May 7 04:13
well Hi first off. I have a question for the group. what do you do for sleepless nights? my wife is having trouble sleeping at night. she says she isnt sleepy and just lays awake until I go to sleep. then she gets up and spends the night working puzzles and such . also does any one have a dry hacky cough? she has... more
- sleep Ellen, Thu May 8 01:59
- cough Cricket, Wed May 7 21:58
- sleepless nights Cricket, Thu May 8 17:06
No Subject mary, Tue May 6 16:51
i know stress is a big factor dealing with Still's. i was working at a retail store, but ive had to quit because it was too stressful. i know i need to work because i have bills and i just would not be finacially stable. i dont want to go back to retail because first of all, i personally think that it is one of the... more
I have a Question for Stills buddies Heathergirl, Sun May 4 23:40
I was diagnosed with Still's in January of this year. I also was newly diagnosed with Hypothyroid 4 months prier and put on synthroid and cytomel. I have all the symptoms of Stills, Rash when I get warm or get a fever when I shower, jont pain, muscle pain. I was off Pred and off my thyroid medications to see how I... more
- Question Margaret, Mon May 5 07:16
- Margaret/Marriage help? Heathergirl, Tue May 6 11:18
- Willing to share ideas Margaret, Wed May 7 09:01
- Marriage Help? Ellen, Wed May 7 07:39
- Marriage/Ellen Heathergirl, Wed May 7 16:28
- Marriage/Heather Ann Ellen, Wed May 7 19:36
- Question about Allergic reaction Melly, Mon May 5 00:44
Newly diagnosed Ada, Fri May 2 14:38
Hi, I'm Ada, I live in the U.S. and was just diagnosed with Still's. It took me five years to get diagnosed and I have just started prednisone but I feel like it is too late. My hips, ankles, wrists and knees are so painful and swollen, somedays I feel like I am going insane with pain!!! What do any of you do for... more
- Meds Cricket, Sun May 4 00:12
- Thanks You Ada, Sun May 4 19:05
- flares Cricket, Mon May 5 01:18
New Member Anonymous, Thu May 1 01:03
Hi, I'm Missy and I was diagnosed 4 years ago. I just turned 29. I used to come around support sites like this but I always ran away because it can get very scary to hear what some of you are going through. It's not that great to have that to look forward to. But now I've come to a part of my life that I desperately ... more
- My story?? Cricket, Thu May 8 02:00
- Re: New Member Anonymous, Tue May 6 16:42
- missy Bobby, Fri May 2 02:16
- Hi Missy Sally, Fri May 2 01:56
- Hi Missy Jessica, Thu May 1 16:40
- New Member Shar, Thu May 1 11:46
No Subject Lisa D., Mon Apr 28 17:26
Is there anyone with still's who can tell me how long their skin rash has lasted? Does it ever go away? My rash has lasted 7 months and counting. I'm having no relief and very frustrated with it. I've been very self concious about it, especially at work with the warmer weather and short sleeves/shorts - I can't be... more
- Re: No Subject Anonymous, Thu May 1 01:10
- Rash Mike, Thu May 1 00:51
- Re: No Subject ara cole, Tue Apr 29 22:51
- skin rash bobby, Tue Apr 29 09:58
No Subject frustraded, Mon Apr 28 04:20
i was diagnosed w/ still's about a year ago. im 22 yrs old and im trying to finish getting my AA degree at a local college where i live. im finding it very difficult to go to school and deal with my condition. im also a full-time worker at a retail store. trying to balance everything is very stressful and i get very... more
- Re: No Subject Mandy, Wed May 7 03:42
- Re: No Subject emily, Fri May 2 14:53
- College Anonymous, Thu May 1 01:23
- school Cricket, Wed Apr 30 15:46
- Re: No Subject ara cole, Tue Apr 29 22:55
- Still's bobby, Tue Apr 29 10:03
- Re: Still's Emily, Fri May 2 14:51
- No subject/fustrated Margaret, Mon Apr 28 07:13
Just got diagnosed with Still's Bobby, Sun Apr 27 13:29
Hey I just got diagnosed with Still's a month ago. I've been taking Prednisone for a little over 3 weeks. I feel like its not working at all. The main problem that I have is with my wrist, its swollen to the point where I can't bend it. Can anyone tell me when it's going to get better?
- When will it get better? Anonymous, Thu May 1 01:44
- Wrist Cricket, Wed Apr 30 01:10
- wrist Mike, Wed Apr 30 00:28
- Just Diagnosed Ellen, Tue Apr 29 07:23
- Re: Just got diagnosed with Still's me too, Mon Apr 28 04:13
- Re: Just got diagnosed with Still's Anonymous, Tue Apr 29 13:40
Newly Diagnosed TXmom, Sun Apr 27 08:26
I am actually in the hospital this very moment typing you guys only 10 hours after being diagnosed with Still's Disease. I wanted to know how full of a life I can lead. I have a 1yr old and 3 yr old and I've only been married for 5 years. A nurse I met here in the hospital came down to talk to me, because her son had... more
- There IS life after Still's Mike, Wed Apr 30 00:48
- Newly Diagnosed reply TXMom, Fri May 2 14:36
- what people think Mike, Fri May 2 15:13
- Life after diagnosis MomtoEd, Mon Apr 28 13:17
- TXMOM Heathergirl, Mon Apr 28 12:39
- newly diagnosed reply TXmom, Fri May 2 22:18
- Newly Diagnosed Ellen, Mon Apr 28 01:16
Canadain financial aid for still's Shar, Sat Apr 26 06:11
Has anyone gotten financial help through are gov.
Just Kineret mom, Fri Apr 25 02:48
I am from India (Delhi), and I live in Greece. This is my first mail. My son, 14 was diagonosed for Stills in Feb. 2008, after his second flare up. He has been on kineret since then and has had high fever only twice during this period. Very often he has stiff and painful knees and other minor joint problems, but... more
- steroids Cricket, Sat Apr 26 06:45
- Re: steroids Anonymous, Sun Apr 27 11:25
- Prednisone Mom, Tue Apr 29 04:00
- Mom mom caroline, Wed Apr 30 18:49
PH Balance Diet Sallu, Wed Apr 23 08:05
Has anyone ever tried a PH Balance Diet. I am reading a book at present by Margaret Hills which advocates an alkaline diet. She apparently was crippled with inflammatory arthritis until she devised this diet. Apparently after following this regime she went from being riddled with arthritis to living a completely... more
Meds Lisa D., Tue Apr 22 18:16
Has anyone taken planequil? How has it worked for you? Any bad side effects? I know there is a rare chance that it may effect your eyesight.
No Subject Anonymous, Sun Apr 20 08:15
Try eating a strict vegan diet-no dairy, no meat, no sugar, no salt, no wheat or flour. Visit www.drfuhrman.com and order his two latest books. They will help you a lot. It is imperative to address the CAUSE of the inflammation, not just the symptom which is what medicine does!
Very Scared Dr, Marleny, Sat Apr 19 00:05
Hi im 24 years old and I live in Dominican Republic, I have just finished my studies with a specialty of Endodontics in Dentistry. I have been told by doctor's that I have Still Disease since june 2007, and this is the second time I get medication. I don't know anyone with this disease and lately get deppresed very... more
- Stills/scared Margaret, Sun Apr 20 07:51
- Thanks alot for returning! Dr, Marleny, Mon Apr 21 21:34
- Forgot to mension... Dr, Marleny, Mon Apr 21 22:01
- Re: Very Scared mandy, Sun Apr 20 05:04
- Re: Very Scared Dr, Marleny, Mon Apr 21 21:40
- Re: Very Scared Anonymous, Tue Apr 22 01:40
- Yes you can have a normal life Steve Richards, Sun Apr 20 04:29
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