Meningioma Talk

Meningioma Talk......
This is a place to post questions and answers; problems and solutions; successes and failures; hopes and support about Meningioma brain tumors. Please use common sense in your postings and respect in your replies. Any posting that is disrespectful of anyone's religious or moral views will be removed. Any commercial advertising posting will be removed. Remember that the messages posted here are the opinion of the author and should not replace the advice of your doctor. The purpose of this site is to exchange information and support, check with your doctor for specific medical advice. You need not supply your name or E-mail address to post. If you include your E-mail address, you will be E-mailed a notification whenever someone responds to your post. I do not collect or use these addresses for any purpose.
Our home page is at: "Meningioma Support and Information". We have lots of links to meningioma information. You can also participate in a discussion at: "Yahoo Group: Meningioma Support and Information". I am sole owner of this web site and welcome contributions for its support. Click on the "PayPal" or "Amazon Honor System" buttons at the bottom of the page to contribute. E-mail me with any questions or suggestions you may have. My best to each of you.
Alan alanherendich@yahoo.com
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Enjoy Hope and Cagney — Fred, Mon Nov 23 06:39

Maybe you are all too young to remember these great actors? http://www.youtube.com/watch?v=JOoNOs8Ql28

Anger issues are fairly common — Anne Breen, Sun Nov 22 12:59

My dear Meningimates, Anger issues maybe one of the areas we have trouble dealing with and hesitate to mention with each other. I have tried to deal with my own by redirecting and using the high energy levels anger produces in me for more productive and positive purposes, like volunteering to write to all of you,... more
Beautifully spoken, Anne B (nm) — Berta, Tue Nov 24 22:48

I'm THANKFUL — Linda, Wed Nov 18 19:15

I'm thankful..no change in my MRI! HAPPY THANKSGIVING TO ALL! Thank you to all who prayed and supported me.
Lots to be thankful for! — Kristi, Thu Nov 19 23:02

new dx — Tabbytoo, Sat Nov 21 17:21

new seizure meds — Zazel O'Garra, Sun Nov 22 06:47

Zazel — sophia, Sun Nov 22 08:36

seizure meds — Zazel, Sun Nov 22 14:10

Re: new dx — Anonymous, Sat Nov 21 23:39

Welcome Tabbytoo — Anne Breen, Sat Nov 21 23:03

Thank you, Anne. — Tabbytoo, Mon Nov 23 08:49

HAPPY THANKSGIVING!! — Zazel, Tue Nov 24 09:25

Tampa Bt conference on Jan 22 and 23, 2010 — Anne Breen, Mon Nov 23 13:00

BT conference in Tampa — Tabbytoo, Mon Nov 23 14:48

MY M FRIENDS — GERDA, Tue Nov 24 03:50

Prayers in your name — Berta, Tue Nov 24 22:45

Linda — sophia, Thu Nov 19 10:52

FOR ALL MY FRIENDS — GERDA, Fri Nov 20 03:27

Same to you dear Gerda! Luv U! Happy Thanksgiving! (nm) — Jodi M., Sat Nov 21 21:10

Great news Linda, Happy Thanksgiving to you, God is good! (nm) — Jodi, Thu Nov 19 10:16

Linda I can feel your relief. So happy for you!Prayers Work (nm — Elaine , Thu Nov 19 09:12

I'm thankful too with your good news (nm) — Anne Breen, Wed Nov 18 21:42

Isn't this great! — Fred Fels, Sat Nov 14 06:35

I volunteer here and heard nothing about this! http://virtualtrials.com/news3.cfm?item=4686

MRI on Wed. Nov. 11 at 10:00-to everyone — Linda , Tue Nov 10 10:40

Jodi, Anne and everyone: Tomorrow is the day. Thank you for all the suggestions to help me through this dreaded MRI. I am claustrophic big time. I have been working on a mental game plan. I have memorized hymns. I am going to pray for all of you on this board. I am going to recall college days and roommates. I will... more
Linda, did your new techniques work?? (nm) — janet, Sat Nov 14 06:26

Janet/techniques — Linda, Sat Nov 14 08:10

Your MRI — Sherry, Wed Nov 11 19:25

linda — sophia, Wed Nov 11 05:00

Sophia — Linda, Thu Nov 12 10:25

Acoustic Neuroma — Elaine, Fri Nov 13 12:52

Hang in there Linda, think positive thoughts!! (nm) — Jodi M., Tue Nov 10 21:26

Jodi/positive t houghts — Linda, Thu Nov 12 10:28

Thata Girl Linda — Anne Breen, Fri Nov 13 20:48

Like Anne said, we are proud you were strong Linda! (nm) — Jodi, Sat Nov 14 07:49

Jodi — Linda, Sat Nov 14 08:15

LINDAS MRI — GERDA, Tue Nov 10 21:15

Gerda's MRI in Dec. — Linda, Thu Nov 12 10:32

LINDA — GERDA, Fri Nov 13 01:20

Gerda — Linda, Sat Nov 14 08:20

Semper Fidelis — Fred, Tue Nov 10 07:02

https://www.godaddy.com/gdshop/holiday/usmc2009/default.asp?isc=gdr1162d

weird mri — tim, Mon Nov 2 11:37

had to go for my yearly mri of my brain whats left, they also did a mri of my neck and spine , been haveing some problems there,while i was in the mri machine i felt a lite electic shock on both arms, lasted for about 15 seconds. never had that before. both arms jerked away from my body, afterwards i asked the tech... more
DEAR TIM — Anne Breen, Sat Nov 21 10:27

Tim — Anne Breen, Mon Nov 2 16:27

Adavan/MRI — Linda, Fri Oct 30 13:27

I called the NS and he says I have to have the full head MRI :(. They are calling in a prescription for Adavan. Does anyone know how this affects you are or anything about it? Will it put me almost out or just take the edge off of nervousness? (The MRI took an hour last time. Last time I had Valium and it did not help ... more
try a xanax — sherry, Sun Nov 1 17:38

Adavan/Ativan — Linda, Fri Oct 30 13:31

Ativan is Lorazepam — Anne Breen, Sat Oct 31 00:23

Applied for Canadian citizenship — kylechristensen48, Sat Nov 7 09:00

Kyle — Anne Breen, Sat Nov 7 15:57

Thank you — kylechristensen48, Sat Nov 7 16:13

Loss of Hearing. — Elaine (Las Vegas Nev.), Sun Nov 1 13:43

Elaine — Alison, Tue Nov 3 07:46

Thank you Anne & Allison for the Information. It helps! (nm) — Elaine, Tue Nov 3 09:37

I had loss of hearing! Incorrectly I said,"More." (nm) — Elaine, Mon Nov 2 15:14

Loss of Hearing — Tana, Mon Nov 2 10:51

Tana (nm) — Elaine, Fri Nov 6 12:42

Tana (tumor size) — Elaine, Fri Nov 6 12:58

MY DEAR M FRIEND, Elaine, — Anne Breen, Mon Nov 2 01:51

hereditary meningiomas — Stephanie, Tue Nov 3 08:01

hereditary meningiomas — edyie, Wed Nov 4 07:31

hereditary meningiomas — Anonymous, Wed Nov 4 19:49

hereditary meningiomas — edyie, Thu Nov 5 08:16

RARE — Anne Breen, Fri Nov 6 10:38

Familial meningiomas with NF2 — Anne Breen, Wed Nov 4 06:50

inherited meningiomas — Laura, Thu Nov 5 08:07

heredity — Sherry, Thu Nov 5 17:00

Stephanie — Anne Breen, Wed Nov 4 05:20

Hi Anne — Stephanie, Wed Nov 4 19:57

Anne Breen and All My M. Friends! — Elaine, Mon Nov 2 15:19

Elaine — Anne Breen, Mon Nov 2 16:22

Latest on Dennis — Clovia in NYC, Thu Oct 29 01:36

Where to begin? Recap. Dennis slipped in the park Labor Day. I noticed his leg was swollen that afternoon. Trip to the ER, x-ray, nothing broken. Sent home with "elevate, ice it, keep him off of it". After a week swelling still not down back to ER blood clots in BOTH legs! Admitted, put on coumadin. Transferred to... more
Clovia and Dennis — Linda, Fri Oct 30 13:22

CLOVIA — SOPHIA, Fri Oct 30 06:41

Always getting my prayers, Clovia, luv u! (nm) — Jodi , Fri Oct 30 06:14

Prayer for Clovia and Dennis — Anne Breen, Thu Oct 29 22:44

CLOVIA AND DENNIS — GERDA, Thu Oct 29 23:01

dragging my feet/MRI — Linda, Tue Oct 27 09:06

I am supposed to have my second MRI in Oct....am on W&W. I keep putting off making the appt. as I am terrified during MRI's. I have read good suggestions on here and yet, I just don't think I can do it. My first was an hr. long but now that they know a specific location of a M, would this one be lots shorter? (It... more
Linda did you get your MRI done? — Anne Breen, Mon Nov 2 16:35

MRI done? — Linda, Tue Nov 3 11:44

Linda — Anne Breen, Wed Nov 4 05:56

MRI scheduled — Linda, Thu Nov 5 08:48

Linda — Anne Breen, Mon Nov 9 13:39

Recent MRI -Good News — Linda Jean, Tue Nov 10 14:14

MRI/M at SS vein -Linda Jean — Linda, Wed Nov 11 12:18

Good news Linda Jean! (nm) — Jodi M, Tue Nov 10 21:27

Anne's imagination... — Jodi M., Mon Nov 9 21:20

Imagining! — Berta, Tue Nov 10 02:33

MRI/imagining/everyone — Linda, Wed Nov 11 12:08

Neuro Linguistic Programming — Anne Breen, Tue Nov 10 00:01

Neurolinguistic programming- off topic — Anne Breen, Tue Nov 10 17:05

health care or warfare? Off topic? not really — Anne Breen, Tue Nov 10 18:18

health care reform in Cleveland — Anne Breen, Tue Nov 10 21:45

Linda, I pray your MRI is quick and very unstressful! (nm) — Jodi, Fri Nov 6 19:23

THATA GIRL! YOU DID IT Linda — Anne Breen, Fri Nov 6 10:24

Beautifulcoaching, Anne B--your support in relentless :) (nm) — Berta, Fri Nov 6 19:51

Let me say that again! Your support is relentless (nm) — Berta, Fri Nov 6 19:52

ANNE BREEN — GERDA, Sat Nov 7 04:41

Linda — Jodi, Wed Oct 28 10:57

linda — gerda, Wed Oct 28 06:43

MRI — Sherry, Tue Oct 27 13:14

lots of reading material about CT scans etc long AMB — Anne Breen, Mon Oct 26 01:27

My dear Meningimates, This is very long articles to read and off our specific topic and I really hope you get regular MRIS now, instead of more CAT scans. Does this report below help explain the two fold elevated risk of meningioma in women compared to men? Productive inquiry starts with reading and asking intelligent ... more
fewer mammograms too — Anne Breen, Sat Nov 21 11:03

Read about thermal heat abulation — Anne Breen, Mon Oct 26 00:43

Dear Meningimates, I am very hopeful about this new bt treatment technique http://www.fusfoundation.org/brain-workshop-summary?start=2 This brain workshop section has good meningioma treatment discussion and this new thermal technique and machinery may hopefully be available soon in a few places It might become a... more

longterm cell phone use — Anne Breen, Mon Oct 26 00:22

The world health organization is about to issue an new warning on cell phone use for risk of acoustic neuromas http://www.themedguru.com/20091025/newsfeature/prolonged-mobile-phone-use-linked-cancer-86130374.html Just be careful to limit your time use to short calls, some of our kids have already changed to texting,... more
Cell Phones — Berta, Tue Oct 27 08:36

Berta and PK — Clovia in NYC, Wed Oct 28 23:50

Yes, Clovia — Berta, Fri Oct 30 01:05

Anne, article on cell phone use — janet, Tue Oct 27 05:40

America's military — Fred, Thu Oct 22 06:42

THE STAR SPANGLE BANNER as you never heard it before! http://www.youtube.com/watch?v=9ETrr-XHBjE
NEVER get tired of hearing it!!Thanx Fred (nm) — Clovia in NYC, Fri Oct 23 04:43

Thoughts on this flu — Berta, Wed Oct 21 21:50

Since I don't want to compromise P.K.'s health, we both went for a regular flu shot yesterday. I also got a shot for pneumonia (which I wouldn't have) also as a preventative because of his immune system. I have to check his records to see if he has had one since the "P" shot is only required every 5 years. As for the... more
flu shots scare me — Sherry, Fri Oct 23 06:52

Flu shots scare me too! — Annette, Sun Oct 25 16:44

flu shot — edyie, Mon Oct 26 10:25

ediye — GERDA, Tue Oct 27 05:18

flu shot — edyie, Tue Oct 27 07:12

Fatigue and nutrition — Anne Breen, Sat Oct 24 14:13

Sherry - absolutely agree — janet, Sat Oct 24 08:11

Adiction to games — Fred, Wed Oct 21 07:48

Whe4n you get adicted, you guys will ask me to ge off this site. http://www.ferryhalim.com/orisinal/g2/applegame.htm
got 55 my first time! let the addiction begin!!! (nm) — sherry, Mon Oct 26 07:46

Tonight I caught 43 on my first try (nm) — Anne Breen, Mon Oct 26 01:31

THANKS FRED I only caught 33 apples (nm) — Anne Breen, Wed Oct 21 22:30

Blonde joke for a smile today — Fred, Tue Oct 20 06:47

A man is driving along a highway and sees a rabbit jump out across the middle of the road. He swerves to avoid hitting it, but unfortunately the rabbit jumps right in front of the car. The driver, a sensitive man as well as an animal lover, pulls over and gets out to see what has become of the rabbit. Much to his... more
Fred -- as always, love your funnies (nm) — janet, Wed Oct 21 15:36

Hair spray — Anne Breen, Wed Oct 21 03:27

MRI — All, Sat Oct 24 12:03

Elaine, glad for no growth!! yeah! (nm) — Jodi , Mon Oct 26 09:20

Another new play to Elaine — Anne Breen, Sat Oct 24 13:53

more writing ideas for therapy — Anne Breen, Mon Oct 19 01:43

MY dear meningimates, and all our loves ones are meningimates too, it is my affectionate term for all who have been affected by any low grade brain tumor, including their family members and significant others We can share freely here in our open forum about anything regarding our life after meningioma treatment too.... more
journal writing is good self therapy — Anne Breen, Wed Nov 4 20:52

info for barbara about my drug use of mifepristone — Anne Breen, Wed Oct 14 04:51

My dear Meningimate Barbara, I have taken Ru-486 for almost 7 years to control my recurrent meningioma, first in a US clinical trial where I got it for free from 1996 to 1999, then again since Feb 2005 to currently, it is delivered to my doctor from the Feminist Majority Foundation to the local Tucson VA hospital, and ... more

Could use some help, please! — Annette, Wed Oct 14 04:33

I am at WAW with (2) M's and have been now for about 5 years, the second one now for only 1. They are in a location that I'm told can only be removed with Gamma Knife. I take topomax due to seizure but other than that and headaches I'm basically alright. Several days ago I started having leg cramps that got worse as... more
Dear Annette — Anne Breen, Wed Oct 14 05:46

Reply to Anne — Annette D, Wed Oct 14 13:43

Dark chocolate is a vegetable — Anne Breen, Wed Oct 14 15:15

Reply to Anne — Annette D, Wed Oct 14 16:11

I can not say hon — Anne Breen, Wed Oct 14 16:22

Reply t o Anne — Annette D, Wed Oct 14 16:36

Annette — Anne Breen, Fri Oct 23 22:30

Reply to Anne — Annette, Sat Oct 24 05:34

Annette — Anne Breen, Sat Oct 24 09:41

To Anne B — Annette, Sat Oct 24 10:23

Annette — Anne Breen, Sat Oct 24 12:20

To Anne B. — Annette, Sat Oct 24 17:03

Annette Did you do OK? — Anne Breen, Mon Nov 2 16:42

Reply to Anne B. — Annette, Mon Nov 2 17:16

Annette How are you doing? — Anne Breen, Mon Nov 23 22:17

Reply to Anne — Annette, Tue Nov 24 06:21

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