Meningioma Talk

Meningioma Talk......
This is a place to post questions and answers; problems and solutions; successes and failures; hopes and support about Meningioma brain tumors. Please use common sense in your postings and respect in your replies. Any posting that is disrespectful of anyone's religious or moral views will be removed. Any commercial advertising posting will be removed. Remember that the messages posted here are the opinion of the author and should not replace the advice of your doctor. The purpose of this site is to exchange information and support, check with your doctor for specific medical advice. You need not supply your name or E-mail address to post. If you include your E-mail address, you will be E-mailed a notification whenever someone responds to your post. I do not collect or use these addresses for any purpose.
Our home page is at: "Meningioma Support and Information". We have lots of links to meningioma information. You can also participate in a discussion at: "Yahoo Group: Meningioma Support and Information". I am sole owner of this web site and welcome contributions for its support. Click on the "PayPal" or "Amazon Honor System" buttons at the bottom of the page to contribute. E-mail me with any questions or suggestions you may have. My best to each of you.
Alan alanherendich@yahoo.com
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weird mri — tim, Mon Nov 2 11:37

had to go for my yearly mri of my brain whats left, they also did a mri of my neck and spine , been haveing some problems there,while i was in the mri machine i felt a lite electic shock on both arms, lasted for about 15 seconds. never had that before. both arms jerked away from my body, afterwards i asked the tech... more
Tim — Anne Breen, Mon Nov 2 16:27

Adavan/MRI — Linda, Fri Oct 30 13:27

I called the NS and he says I have to have the full head MRI :(. They are calling in a prescription for Adavan. Does anyone know how this affects you are or anything about it? Will it put me almost out or just take the edge off of nervousness? (The MRI took an hour last time. Last time I had Valium and it did not help ... more
try a xanax — sherry, Sun Nov 1 17:38

Adavan/Ativan — Linda, Fri Oct 30 13:31

Ativan is Lorazepam — Anne Breen, Sat Oct 31 00:23

Applied for Canadian citizenship — kylechristensen48, Sat Nov 7 09:00

Kyle — Anne Breen, Sat Nov 7 15:57

Thank you — kylechristensen48, Sat Nov 7 16:13

Loss of Hearing. — Elaine (Las Vegas Nev.), Sun Nov 1 13:43

Elaine — Alison, Tue Nov 3 07:46

Thank you Anne & Allison for the Information. It helps! (nm) — Elaine, Tue Nov 3 09:37

I had loss of hearing! Incorrectly I said,"More." (nm) — Elaine, Mon Nov 2 15:14

Loss of Hearing — Tana, Mon Nov 2 10:51

Tana (nm) — Elaine, Fri Nov 6 12:42

Tana (tumor size) — Elaine, Fri Nov 6 12:58

MY DEAR M FRIEND, Elaine, — Anne Breen, Mon Nov 2 01:51

hereditary meningiomas — Stephanie, Tue Nov 3 08:01

hereditary meningiomas — edyie, Wed Nov 4 07:31

hereditary meningiomas — Anonymous, Wed Nov 4 19:49

hereditary meningiomas — edyie, Thu Nov 5 08:16

RARE — Anne Breen, Fri Nov 6 10:38

Familial meningiomas with NF2 — Anne Breen, Wed Nov 4 06:50

inherited meningiomas — Laura, Thu Nov 5 08:07

heredity — Sherry, Thu Nov 5 17:00

Stephanie — Anne Breen, Wed Nov 4 05:20

Hi Anne — Stephanie, Wed Nov 4 19:57

Anne Breen and All My M. Friends! — Elaine, Mon Nov 2 15:19

Elaine — Anne Breen, Mon Nov 2 16:22

Latest on Dennis — Clovia in NYC, Thu Oct 29 01:36

Where to begin? Recap. Dennis slipped in the park Labor Day. I noticed his leg was swollen that afternoon. Trip to the ER, x-ray, nothing broken. Sent home with "elevate, ice it, keep him off of it". After a week swelling still not down back to ER blood clots in BOTH legs! Admitted, put on coumadin. Transferred to... more
Clovia and Dennis — Linda, Fri Oct 30 13:22

CLOVIA — SOPHIA, Fri Oct 30 06:41

Always getting my prayers, Clovia, luv u! (nm) — Jodi , Fri Oct 30 06:14

Prayer for Clovia and Dennis — Anne Breen, Thu Oct 29 22:44

CLOVIA AND DENNIS — GERDA, Thu Oct 29 23:01

dragging my feet/MRI — Linda, Tue Oct 27 09:06

I am supposed to have my second MRI in Oct....am on W&W. I keep putting off making the appt. as I am terrified during MRI's. I have read good suggestions on here and yet, I just don't think I can do it. My first was an hr. long but now that they know a specific location of a M, would this one be lots shorter? (It... more
Linda did you get your MRI done? — Anne Breen, Mon Nov 2 16:35

MRI done? — Linda, Tue Nov 3 11:44

Linda — Anne Breen, Wed Nov 4 05:56

MRI scheduled — Linda, Thu Nov 5 08:48

Linda, I pray your MRI is quick and very unstressful! (nm) — Jodi, Fri Nov 6 19:23

THATA GIRL! YOU DID IT Linda — Anne Breen, Fri Nov 6 10:24

Beautifulcoaching, Anne B--your support in relentless :) (nm) — Berta, Fri Nov 6 19:51

Let me say that again! Your support is relentless (nm) — Berta, Fri Nov 6 19:52

ANNE BREEN — GERDA, Sat Nov 7 04:41

Linda — Jodi, Wed Oct 28 10:57

linda — gerda, Wed Oct 28 06:43

MRI — Sherry, Tue Oct 27 13:14

lots of reading material about CT scans etc long AMB — Anne Breen, Mon Oct 26 01:27

My dear Meningimates, This is very long articles to read and off our specific topic and I really hope you get regular MRIS now, instead of more CAT scans. Does this report below help explain the two fold elevated risk of meningioma in women compared to men? Productive inquiry starts with reading and asking intelligent ... more

Read about thermal heat abulation — Anne Breen, Mon Oct 26 00:43

Dear Meningimates, I am very hopeful about this new bt treatment technique http://www.fusfoundation.org/brain-workshop-summary?start=2 This brain workshop section has good meningioma treatment discussion and this new thermal technique and machinery may hopefully be available soon in a few places It might become a... more

longterm cell phone use — Anne Breen, Mon Oct 26 00:22

The world health organization is about to issue an new warning on cell phone use for risk of acoustic neuromas http://www.themedguru.com/20091025/newsfeature/prolonged-mobile-phone-use-linked-cancer-86130374.html Just be careful to limit your time use to short calls, some of our kids have already changed to texting,... more
Cell Phones — Berta, Tue Oct 27 08:36

Berta and PK — Clovia in NYC, Wed Oct 28 23:50

Yes, Clovia — Berta, Fri Oct 30 01:05

Anne, article on cell phone use — janet, Tue Oct 27 05:40

America's military — Fred, Thu Oct 22 06:42

THE STAR SPANGLE BANNER as you never heard it before! http://www.youtube.com/watch?v=9ETrr-XHBjE
NEVER get tired of hearing it!!Thanx Fred (nm) — Clovia in NYC, Fri Oct 23 04:43

Thoughts on this flu — Berta, Wed Oct 21 21:50

Since I don't want to compromise P.K.'s health, we both went for a regular flu shot yesterday. I also got a shot for pneumonia (which I wouldn't have) also as a preventative because of his immune system. I have to check his records to see if he has had one since the "P" shot is only required every 5 years. As for the... more
flu shots scare me — Sherry, Fri Oct 23 06:52

Flu shots scare me too! — Annette, Sun Oct 25 16:44

flu shot — edyie, Mon Oct 26 10:25

ediye — GERDA, Tue Oct 27 05:18

flu shot — edyie, Tue Oct 27 07:12

Fatigue and nutrition — Anne Breen, Sat Oct 24 14:13

Sherry - absolutely agree — janet, Sat Oct 24 08:11

Adiction to games — Fred, Wed Oct 21 07:48

Whe4n you get adicted, you guys will ask me to ge off this site. http://www.ferryhalim.com/orisinal/g2/applegame.htm
got 55 my first time! let the addiction begin!!! (nm) — sherry, Mon Oct 26 07:46

Tonight I caught 43 on my first try (nm) — Anne Breen, Mon Oct 26 01:31

THANKS FRED I only caught 33 apples (nm) — Anne Breen, Wed Oct 21 22:30

Blonde joke for a smile today — Fred, Tue Oct 20 06:47

A man is driving along a highway and sees a rabbit jump out across the middle of the road. He swerves to avoid hitting it, but unfortunately the rabbit jumps right in front of the car. The driver, a sensitive man as well as an animal lover, pulls over and gets out to see what has become of the rabbit. Much to his... more
Fred -- as always, love your funnies (nm) — janet, Wed Oct 21 15:36

Hair spray — Anne Breen, Wed Oct 21 03:27

MRI — All, Sat Oct 24 12:03

Elaine, glad for no growth!! yeah! (nm) — Jodi , Mon Oct 26 09:20

Another new play to Elaine — Anne Breen, Sat Oct 24 13:53

more writing ideas for therapy — Anne Breen, Mon Oct 19 01:43

MY dear meningimates, and all our loves ones are meningimates too, it is my affectionate term for all who have been affected by any low grade brain tumor, including their family members and significant others We can share freely here in our open forum about anything regarding our life after meningioma treatment too.... more
journal writing is good self therapy — Anne Breen, Wed Nov 4 20:52

info for barbara about my drug use of mifepristone — Anne Breen, Wed Oct 14 04:51

My dear Meningimate Barbara, I have taken Ru-486 for almost 7 years to control my recurrent meningioma, first in a US clinical trial where I got it for free from 1996 to 1999, then again since Feb 2005 to currently, it is delivered to my doctor from the Feminist Majority Foundation to the local Tucson VA hospital, and ... more

Could use some help, please! — Annette, Wed Oct 14 04:33

I am at WAW with (2) M's and have been now for about 5 years, the second one now for only 1. They are in a location that I'm told can only be removed with Gamma Knife. I take topomax due to seizure but other than that and headaches I'm basically alright. Several days ago I started having leg cramps that got worse as... more
Dear Annette — Anne Breen, Wed Oct 14 05:46

Reply to Anne — Annette D, Wed Oct 14 13:43

Dark chocolate is a vegetable — Anne Breen, Wed Oct 14 15:15

Reply to Anne — Annette D, Wed Oct 14 16:11

I can not say hon — Anne Breen, Wed Oct 14 16:22

Reply t o Anne — Annette D, Wed Oct 14 16:36

Annette — Anne Breen, Fri Oct 23 22:30

Reply to Anne — Annette, Sat Oct 24 05:34

Annette — Anne Breen, Sat Oct 24 09:41

To Anne B — Annette, Sat Oct 24 10:23

Annette — Anne Breen, Sat Oct 24 12:20

To Anne B. — Annette, Sat Oct 24 17:03

Annette Did you do OK? — Anne Breen, Mon Nov 2 16:42

Reply to Anne B. — Annette, Mon Nov 2 17:16

Review of MAD bt conference in Boston — Anne Breen, Wed Oct 14 04:27

I have copied this long message full of very good stuff you can google more with the key words she gives us and the patient story of the depression w/meningioma from the recent newsweek survivor story from dear our m friend Cindi Rixey Scott, who was there is fantastic. it makes so much sense to me, cuz I have always... more
Thermal abulation with ultra sound heat waves for MNG — Anne Breen, Mon Oct 19 01:57

Awesome....... (nm) — Berta, Wed Oct 14 11:21

Good Brain tumor site to read updated — Anne Breen, Wed Oct 14 04:04

My dear Meningimates, This has always been one of my favorite online brain tumor resource handbooks, please read the resource section first and educate yourself about what your doctor thinks your type of brain tumor it might be from looking at your MRi scans. Maybe its because I am a former New Yorker and have a... more

To all my "M" friends — Renee, Tue Oct 13 10:23

My dear "M" friends, Berta, Sophia and everyone with much thanks for thinking of me on Monday when I had my MRI done, just picked up my results and sadly it now measures 3.2 x 3.5 x 3.6 cm which means it has grown since Dec. 08 and I am now starting to notice my vision loss, mine is in the occipital region I will be... more
Renee — Anne Breen, Fri Oct 23 22:38

Renee? how are you? its more than a week dear (nm) — Anne Breen, Sat Oct 24 09:48

Hi Renee — vincent, Sun Oct 18 06:20

Renee — sophia, Wed Oct 14 11:16

DEAR Renee — Anne Breen, Wed Oct 14 03:36

Renee — Berta, Tue Oct 13 22:25

RENEE — gerda, Tue Oct 13 21:54

Renee — Clovia in NYC, Tue Oct 13 21:38

ALERT!!! — Fred, Thu Oct 8 06:13

http://www.consumeraffairs.com/news04/2008/08/pyrex.html I HOPE EVERYONE TAKES THE TIME TO READ THIS MESSAGE.
Alert BRAIN NEWS — Anne Breen, Mon Oct 19 01:48

Bea: If you leave, look what you miss — Fred, Wed Oct 7 05:39

Guys: Place the coin in the slot and enjoy the coffee. LOVE YA ALL http://www.cartoline.it/pics/_zoom_flash.htm?immagine=scherzi_150404_01.swf

Bea--Regroup.. — Berta, Sun Oct 4 16:07

Dearest Bea... You know, Bea that we have gone through spells such as this and it merely brings our character to surface, our issues and our passion! However, one thing that we can each join in hands is the fact that we deal with an invader that has turned our worlds upside and inside out. One thing we can agree upon... more
Sisterhood of all women — Anne Breen, Thu Oct 8 16:39

Did anyone hear from BEA and Cliff yet? (nm) — Anne Breen, Mon Nov 2 16:43

Bea & Dennis — SOPHIA, Tue Nov 3 06:38

Sophia — Anne Breen, Wed Nov 4 03:43

Yup, Dennis is mine :) (nm) — Clovia in NYC, Wed Nov 4 14:59

clovia — sophia, Thu Nov 5 05:52

Anne — sophia, Wed Nov 4 06:13

Thanks Sophia (nm) — Anne Breen, Wed Nov 4 06:33

Amen, Anne :) (nm) — Berta, Thu Oct 8 21:49

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