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This is a discussion board for:

 

People who care for a transplanted child who was born with a urea cycle disorder (UCD).

Families of a UCD-child, who may require a future transplant, that wish to ask questions of people who take care of TRUE Kids.

Please feel free to post your questions, comments, experiences, or frustrations that you want to share with other families.

NOTE: The discussion contained herein may not apply to your child's unique medical needs.



DO NOT make any changes in your child's treatment without first consulting their physician.



BE AWARE: INFORMATION YOU POST HERE MIGHT BE MONITORED BY HEALTH INSURANCE COMPANIES OR 

UNSCRUPULOUS ENTITIES TO ADVERSELY EFFECT YOUR FAMILY OR OTHERS

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Lease this WebApp and get rid of the ads.

finally getting listedKaren Worley, Wed May 1 8:48am



Lease this WebApp and get rid of the ads.

waitingmarta, Mon Apr 29 10:27am



OTCAnonymous, Mon Apr 22 2:48pm



4 weeks old with citrullinemiaNadia , Wed Mar 20 7:14am



jennifermarta, Tue Mar 12 10:38am



Josh was transplantedJennifer McElroy , Mon Mar 11 12:50pm



listedJennifer McElroy, Tue Jan 15 8:45pm



waiting for a livermarta, Wed Jan 9 8:15pm



No SubjectAnonymous, Sun Jan 6 1:41pm



Pete - citruline question for youeileen, Thu Jan 3 5:14pm
  • CitrulinePeter Bicknell, Mon Jan 7 1:06pm



ASA/ASL Transplant?khaledalal, Tue Dec 25 8:38pm



waitingSammie Robertson, Fri Nov 23 6:59pm



citrulline and arginineeileen/jared's mom, Fri Nov 9 3:27pm



Back in the same boat againJamie, Sat Oct 27 9:11pm



for joemarta, Sat Oct 20 6:43pm



for joe marquemarta, Mon Oct 8 9:46am



for pammarta, Sat Oct 6 11:26am



liver transplant evaluationJennifer McElroy, Sat Sep 22 10:00pm



Today our TRUE Kid turned 13 Years Old!Joe and Michelle Marquez, Fri Mar 23 9:27am



Citrullanemia type 1 liver transplantationmalikzafar2000, Sat Mar 10 6:09pm



OTC at 4 days oldCarmen, Mon Dec 26 9:17pm
  • otcAnonymous, Fri Mar 30 11:25am
  • OTCEric, Sat Feb 18 12:29pm
    • DavidSandy, Sun Feb 19 6:12am
  • OTCeileen, Sun Jan 1 6:43pm
  • Re: OTC at 4 days oldAnonymous, Tue Dec 27 6:05am






TransplantMindy, Mon Sep 12 6:44pm



new Transplant GroupJoe Marquez, Thu Jul 21 11:30am



HelloPatricia V Davis, Wed Jul 13 2:35am
  • Re: HelloJoe Marquez, Thu Jul 14 6:49am
    • Re: HelloPatricia V Davis, Thu Jul 14 4:10pm