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Urea Cycle Disorder Discussion Board

WELCOME!

Everyone is encouraged to discuss all aspects of caring for a child with a UCD on this general discussion board. Feel free to introduce any topic that concerns you about dealing with someone affected by a UCD.

Though most of us parents already know this. . .NEVER, regardless of what you read here, change your child's treatment without first discussing it with your physician. BE AWARE: INFORMATION YOU POST HERE MIGHT BE MONITORED BY HEALTH INSURANCE COMPANIES OR UNSCRUPULOUS ENTITIES TO ADVERSELY AFFECT YOUR FAMILY OR OTHERS.

My husband and I are the parents of a teenager with a partial CPS deficiency and seizures secondary to the disorder.

You may email us if you wish, but by sharing your concerns here you can help others also.

Again, welcome...

Angela

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UCD Med Trials -Wonder About Them?Offishallie, Wed Jan 27 18:57



Lease this WebApp and get rid of the ads.

Jury Duty --Letter to Release From ServiceOfishallie, Wed Jan 27 18:27






peramedicsmarta, Wed Jan 20 11:59



Citrullinemia and High ASL and AST ResultsAnonymous, Fri Jan 15 21:26



New Citrullinemia websiteAnonymous, Fri Jan 15 16:30



favor if you have a minute or twoTheresa, Fri Jan 15 13:55



Randalls 2nd birthday today..Afton, Thu Jan 14 00:18



Gluten -Did you Know it is Protein?Ofishallie, Sun Jan 3 23:47



liver transplantmarta, Sat Jan 2 14:33



Happy Holidaystheresa, Thu Dec 31 15:30



NORD ProgramsOfishallie, Fri Dec 11 11:49



Buphenylcd, Tue Dec 1 11:07



How are you Marta?theresa, Thu Nov 19 16:36



skin biopsy next...theresa, Wed Nov 11 01:47



anyone taking creatine?theresa, Wed Nov 11 01:46
  • CreatineOfishallie, Wed Nov 11 10:38
    • dosage?theresa, Sat Nov 14 21:27



gatorademarta, Sat Nov 7 11:20



stomach troublemarta, Wed Nov 4 11:30



Quick question...Carnitortheresa, Thu Oct 1 17:38



Epigenetics NOVA 7PM CSTOfishie, Tue Sep 22 20:02



went to neuro today...Marta and OfishieTheresa, Mon Sep 21 19:35



New VERY IMPORTANT Website --Need Feedback ASAPOfishallie, Sun Sep 20 18:27



OTC or not? Still no answersTheresa, Sat Sep 19 11:39



Any One on Here from FranceOfishallie, Tue Aug 25 17:57



Asymptomatic CitrullinemiaAmanda, Sun Aug 23 21:44




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Our home page is http://www.2endure.com. You may wish to visit the many links specific to UCDs we have listed there. THANKS FOR VISITING, and ya'all come back!