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Urea Cycle Disorder Discussion Board


Everyone is encouraged to discuss all aspects of caring for a child with a UCD on this general discussion board. Feel free to introduce any topic that concerns you about dealing with someone affected by a UCD.

Though most of us parents already know this. . .NEVER, regardless of what you read here, change your child's treatment without first discussing it with your physician. BE AWARE: INFORMATION YOU POST HERE MIGHT BE MONITORED BY HEALTH INSURANCE COMPANIES OR UNSCRUPULOUS ENTITIES TO ADVERSELY AFFECT YOUR FAMILY OR OTHERS.

My husband and I are the parents of a teenager with a partial CPS deficiency and seizures secondary to the disorder.

You may email us if you wish, but by sharing your concerns here you can help others also.

Again, welcome...


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cps deficienty (son Luc)France desjardins, Thu Feb 26 08:03

  • No Subjectleanora, Wed May 21 11:41

    6th month annivesarymarta, Sat Dec 7 12:07

  • isabellaleanora, Sat Nov 30 23:07

    OTC and arthritisColleen, Fri Jul 19 08:13

    CitrullinemiaKelly Blackwood, Thu Jul 18 18:47

  • Re Marta's TransplantAngela , Wed Jul 10 20:36

  • got a seond chance at life on june 7thmarta, Tue Jun 18 19:11

  • PEG tubesHayley, Sat Jun 15 08:49
    • PEGCindy Le Mons, Mon Jun 17 10:04
      • Re: PEGAnonymous, Mon Jun 17 19:49
        • PEGCindy Le Mons, Tue Jun 18 11:36

  • Asymptomatic citrullenimiaRita, Thu Jun 13 22:22

  • Isabella leanora, Mon Feb 11 21:55

  • Marketing Research SurveyW Fisher, Fri Jan 4 11:22

  • low protien foodsmarta, Wed Oct 31 11:30

  • high ammoniamarta, Wed Oct 10 08:32

    allmost on transplant listmarta, Sat Oct 6 18:57

  • hospitalized oftenmarta, Wed Sep 12 20:44

  • hospitalized oftenAnonymous, Fri Jun 1 09:54

  • possible live donor transplantmarta, Sat Feb 4 13:31

  • How do I get diagnosed? 25 y/o male with suspected UCD. Christopher Vidrine, Fri Nov 25 21:52

  • helpmarta, Thu Sep 8 18:24

    No Subjectmarta, Thu Sep 8 11:59

    Mother of adult daughter with urea cycle disorderMary Gramaccioni, Fri Aug 26 16:18

  • No SubjectLeanora , Wed Jul 20 22:04

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    Our home page is http://www.2endure.com. You may wish to visit the many links specific to UCDs we have listed there. THANKS FOR VISITING, and ya'all come back!