Urea Cycle Disorder Discussion
Everyone is encouraged to discuss all aspects of caring
for a child with a UCD on this general discussion board.
Feel free to introduce any topic that
concerns you about dealing with someone affected by a UCD.
Though most of us parents already know this. . .NEVER, regardless of what you read here, change your child's
treatment without first discussing it with your physician.
BE AWARE: INFORMATION YOU POST HERE MIGHT BE
MONITORED BY HEALTH INSURANCE COMPANIES OR UNSCRUPULOUS ENTITIES TO ADVERSELY
AFFECT YOUR FAMILY OR OTHERS.
My husband and I are the
parents of a teenager with a partial CPS deficiency and seizures secondary
to the disorder.
You may email
us if you wish, but by sharing your concerns here you can help others
to the UCD Discussion Board's new post notification system]