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The Key to Managing Your Fibromyalgia is Information and Sharing Tips and Ideas with Others Having FMS

In this forum feel free to post messages sharing your successes, failures and frustrations in managing your fibromyalgia condition or dealing with your family and friends suffering with Fibromyalgia.

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To Kim...Donna, Sat Sep 29, 2012 16:59
Trying to reach you on Facebook...:) Check messages!



  • Everything is going to be okay :)Briana, Tue Aug 28, 2012 20:01
    I'm a 14 year old girl who just got diagnosed last year. I have been dealing with Fibromyalgia for about 3 years before that. For the past 3 years life has been pretty rough. My lungs have collapsed, my anemia has gotten worse, and of course the Fibromyalgia. There can a time were I thought I would never be able to... more



  • Low Dose NaltrexoneAmy, Mon May 7, 2012 12:06
    I wasn't able to take LDN because I am too sensitive to medication, but I understand it is helping a lot of people with Fibromyalgia. Here's a link to check: http://curetogether.com/blog/2011/10/05/stanford-fibromyalgia-study-on-ldn-replicated-at-curetogether/ Check out Low-Dose Naltrexone if you haven't already. Your ... more



    So young, but so tired.Amanda B, Wed May 2, 2012 12:32
    I got diagnosed with Fibro and CFS about 3 years ago when I was 20. I went to a Rheumatologist, but he never really helped me. All he did was just run tests and confirm that I had it, and then I kind of stopped seeing him. Mainly because it costed so much money (all the blood, xrays, sleep studies, etc.) In between... more



  • Some good news Nightshades free almost pain freesandie_c, Tue Apr 24, 2012 06:37
    Good Morning, it has been a long time since I posted here this post is a bit long but I want to set the background. I am the partner of a Fibro sufferer. Pam had been doing ok, the usual pain and fatigue, she does not take any drugs except pain relief OTC and the occasional muscle relaxer when sleep is much needed... more



  • What is your story?Shelly, Fri Mar 16, 2012 15:39
    I am getting ready to publish my first kindle book! It will be a short fibromyalgia guide, primarily to help "normals" understand our battle a bit better, and also just to compile information from many sources. I would really like to add some stories from fibro patients to round it out, and thought there might be some ... more



    Feeling low (Fibromyalgia)Jason, Thu Jan 12, 2012 05:02
    Hi all I recently posted a lot of info about the use of Alpha Stim (cranial electrotherapy) which I have had huge success with, however since Christmas symptoms have become more troublesome again. I've previously (due to motor accident) had two cervical discs removed, I have a Tantilum cage fitted between two... more



  • Flare upMarlene, Mon Jan 9, 2012 16:05
    3 days ago, after a particularly stressful couple of weeks, I suddenly developed a severe headache and poor circulation in my hands, and then a fever. I have had Fibromyalgia for over 12 years and it has been for the most part under control. Not now. The headache is better, there's no more fever, but now I have... more



  • Research about Men with Fibro and Relationshipsdshelton, Sun Jan 8, 2012 18:59
    Hello, My name is Devin Shelton, a doctoral student at The School of Professional Psychology at Forest Institute. I am conducting research under the supervision of my supervisor, Dr. Kristina Brown, and would greatly appreciate your participation. The purpose of this study is to gain a better understanding of the... more



    thyroid nodulesfibro, Wed Jan 4, 2012 12:52
    i have a chestnut size nodule on my thyroid gland plus small nodules i had a biopsy it showed no cancer. could this be any relation to my fibromyalgia. anyone have these issues thank you



  • hi allaimee', Wed Jan 4, 2012 11:48
    wanted to wish all a happy new year and less pain to come this year I know it's hard to think of it even though I too am in severe pain especially now that the weather dropped dramatically. I hope you all are well and that you had a happy holiday season! I am keeping all of you in my prayers. Blessings. Aimee'



  • working with Fibrowinger, Sun Jan 1, 2012 14:12
    Hi there, I am new to the forum and am happy to be apart of the support system of this site..thank you I have been dealing with fibro and chronic fatigue for over 20yrs but was diagnosed in 2011.. I am in pain every day aching back muscles, headaches, soreness in my spine from arthritis and a herniated disk in my low... more



  • MarinolSelisa, Fri Dec 30, 2011 10:47
    I have had fibromyalgia since I was about 8 years old but back in the 80's they didn't know what it was. I went untreated for years and it was hellish. I am prescribed a medication called Marinol for my fibromyalgia which is synthetic marijuana created in a lab. I am able to have a pain free life and I can do many... more
    • SelisaKimberly Worman, Sat Dec 31 09:52
      • vit d3lrh, Sat Dec 31 14:54



  • Finding A Good DoctorRon K, Sat Nov 19, 2011 16:20
    Hi folks! I was diagnosed with FM about a year and a half ago but have been suffering with the symtoms for 20 years. I live in rural Ontario and I'm trying to find a good Doctor that is modern thinking. Not a Doctor that believes in the pressure point theory as this diagnostic approach is outdated and draconian. If... more



    Finding A Good DoctorRon K, Sat Nov 19, 2011 16:18
    Hi folks! I was diagnosed with FM about a year and a half ago but have been suffering with the symtoms for 20 years. I live in rural Ontario and I'm trying to find a good Doctor that is modern thinking. Not a Doctor that believes in the pressure point theory as this diagnostic approach is outdated and draconian. If... more



  • Hi All and Kim!!Aimee', Sun Nov 13, 2011 18:07
    Wow Indiana sounds so nice. My aunt suggested to me if I was ever near or in snow to lay in it and it will help numb me. lololol. I don't think she understands the extent of what we go through with the cold. Bless her anyways lol. Speaking of animals I have this huge broad breasted Turkey we are well...my mom and dad... more
    • AimeeKimberly, Mon Nov 14 07:51
      • kimD, Wed Apr 25 00:36



  • emotionally exhaustedalone, Wed Oct 5, 2011 15:56
    Sometimes its the pain, and sometimes its the other Rolodex of symptoms brought to me by fibromyalgia; but recently what I've been struggling with the most is that i feel like no one understands. I'm a male in my mid 20s, and as all other males my age do, me and my friends make fun of each other in jest; however when... more



  • hellocmadron1, Mon Oct 3, 2011 18:11
    hello everyone; hoping someone here can help. have all of the wonderful systoms of fibro. have been dealing with this for about 5 yrs now. nothing helps. Had to quit work in jan because pain became to much. Have seen so many different doc the last 5 yrs none of which have helped. we have no fibro doc in this area and... more
    • Tulsa Areareta, Tue Oct 4 06:14
      • Thankscmadron1, Tue Oct 4 15:16
        • the only thing i knowmisty, Tue Oct 18 13:17
        • Lifereta, Tue Oct 4 22:23
          • sorrycarol, Wed Oct 5 13:06
          • hopingAnonymous, Wed Oct 5 13:01
          • retaKimberly Worman, Wed Oct 5 10:48
            • animalcarol, Wed Oct 5 13:09
              • carolKimberly Worman, Thu Oct 6 15:35



  • UGHaimee', Wed Jun 22, 2011 14:46
    I think I'm having a horrible flair up lately. Does anyone have a helpful solution to deal with it? I've been meaning to ask. I know hot baths help I have been sleeping a lot. Been tossing and turning cause one side hurts so badly then I roll to other side then that side is killing me so I lye on my stomach and now... more
    • AimeeReta, Thu Jun 23 00:39



  • Self help cure!Isabella, Tue Jun 21, 2011 09:39
    Suffered from fibrolmyalgia for many years, each attack worse than the one before. In Feb. started a really bad period that last until May, had all the usual symptons except headaches. It's now mid June and I am pain free, I sleep well, I have energy and I look normal! I took no medication but this is what seems to be ... more



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