The Managing My Fibromyalgia Forum©

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The Key to Managing Your Fibromyalgia is Information and Sharing Tips and Ideas with Others Having FMS

In this forum feel free to post messages sharing your successes, failures and frustrations in managing your fibromyalgia condition.

We would also hope to hear from friends, family members and co-workers of people with fibromyalgia and have them share their feelings about this illness.

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medsAnonymous, Fri Nov 6 05:33
Hello, does anyone take prozac and topamax to help ease pain? I currently take 10mg prozac am and 5omg topamax at night. I also take tylenol#3 during the day. Is there something better then tylenol#3 for pain? What about vicodin or another pain med? thanks, gail



talking to doctorshannon, Mon Nov 2 11:36
was wondering how other people communicate with their doctors. i think i must be doing something wrong, whenever i finally get around to discussing a problem they always say that give it awhile and if it is still going on then come back. well i have already given it awhile usually bout a month or so because i dont... more
  • DoctorsDonna, Mon Nov 2 22:17



look this upshannon, Tue Oct 27 00:21
was researching guaifenesen and found this article its really long and im not done reading it but if anyone gets a chance, read it and let me know what you think, its by mark london called the truths and myths about guaifenesin. its pretty interesting.



i forgot....shannon, Mon Oct 26 18:25
speaking of fibro fog... i wanted to ask if anyone gets muscle spasms. well i don't know if they are technically muscle spasms but when my body needs to rest and i need to sleep my muscles literaly jump away from my body. like a convulsion or something, its now been happening during the day, n i find it embarrasing... more



fibro fogshannon, Mon Oct 26 17:51
Does anyone know exactly what fibro fog is? all i know is the more pain and less energy i have the more foggy i am. i know there are some things to help with the pain but does anything help with the fog? i could drink a gallon of coffee and still forget what i am doing. was thinking of trying ginsing or things like... more
  • Fogreta , Tue Oct 27 08:31



SOOO TIRED!!Shannon, Tue Oct 20 19:45
Hi, im new and would just like some feedback on some things. Im 30,have an 8mon old and was diaganosed 11yrs ago. Im a single mom and am soooo tired that some of my symptoms that i used to have under control are coming back because I can't just focus on taking care of myself anymore. My pain levels are thru the roof... more



fibromyalgiasherry , Thu Oct 15 22:40
after years of all the symptoms and test. I had 2 spinal surgeries this year. My spine doc after talking to him told me i had Fibromyalgia. I could of danced out of the office. Finally someone figured out what was wrong with me & I'm not crazy after all. My doc put me on Lyrica. I'm sleeping,I don't ache,i don't feel... more



What I found!Donna Nolte, Mon Oct 12 11:28
Hi, my name is Donna N. and I think I have suffered from fibromyalgia most of my life. I have had headaches, fatigues spells, aches and a pain that have progressed to what I thought was going to be a painful future. I told doctors about them and they would just look at me in disbelief. But something happened. My... more



senior with fmRay, Wed Sep 30 10:53
I am 71 years old and have been suffering from fm for many years, not knowing what it was. I won't go through all the pains and emotional roller-coaster life associated with it all. I am financially secure, have a wonderful wife (my current wife of 48 years lol) and have no reason for any stress. I have however been... more



Not an Excuserinjii, Tue Sep 29 11:50
I have only been suffering from fibro-related symptoms for four years and I am lucky, for the most part I seem to be leading a pretty normal (albeit less active to an ex-dancer) life. I control the pain with plenty of rest, diet, controlled exercise and homeopathic remedies. I have a supportive husband and family... more



Just Whining :PAnonymous, Sun Sep 27 15:13
Ok, I just woke up and for the usual inexplicable reason I feel sore and tight everywhere. The base of my skull and a bit up feel too tight to hold my brain lol. Really bad news? I can't do anything about it. I don't get more meds till either the 4th or 6th and I'm down to 6 and a half. Which means I can't take... more



Help other hereAnonymous, Fri Sep 25 16:27
http://realfibromyalgia.blogspot.com/



New Fibro PatientErin F, Fri Sep 25 04:54
Hi all, after numerous diagnosis, I was finally diagnosed with Fibromyalgia. As a generally healthy 25 year old this has hit me pretty hard. I ended up in the ER due to severe neck and shoulder pain that led to spasms. This is the second time this has happened in the last 6 weeks. Any advice and support is highly... more



My Fibromyalgia Flare UpsBarb Lucas, Wed Sep 16 10:35
Hello To Everyone, I just wantd to share my thoughts on my flare ups....I sometimes can have good days but for the most part I am always in some sort of pain....I do also have rheumatoid arthritis so at times I don't know what is causing my pain ....lol I am currently taking Enbrel once a week for the RA and Cymbalta... more



How to handle new doctorAvian, Wed Aug 26 03:51
My problem is this: I have had many of the symptoms of FM for a few years now and have been diagnosed with a variety of different disorders including irritable bowel syndrome, insomnia, and chronic fatigue. My pain has largely been ignored or played-down by the random doctors I've been to. (I have no health insurance... more



Who We Are and Are Not ListBill Wallmuller, Wed Aug 12 14:26
I came across this list of: Who We Persons with Fibromyalgia Are and Who We Are Not , on the Fibromyalgia Health Haven Blog by Dannette Rusna Who We Are Not We are not a group of depressed patients who have given up on life. We are not prone to suicide. We are not seeking attention. We do not wish to be pitied. We are ... more



Anyone who is unable to work because you are in sooo much pain please contact California disability lawyer Stuart Sandhaus he is the best! He specializes in fibromyalgia and can help you get the disabilty you deserve! Someone recommeded him to me and now I have to share my secret weapon with you! He knows his stuff... more



serious help with painNana Monster, Thu Jul 16 16:42
I was diognosed with fibro about 6 years ago. I have had arthritis since I was 7. I am now 55 and have spent most of my life living with pain. About 2 1/2 months ago I started taking super-cissus rx. A week later I added bio-sil. I've been taking 4-5 of the supet-cissus and 2 of the bio-sil. Within a week there was a... more



Your body has a natural system of renewal that can be tapped into easily. Through increasing the number of circulating adult stem cells in your body the pain and inflamation from your fibro can be decreased substantially. My girlfriend is virtually pain free and doesnt even know what to do with herself now. She has... more



I'm backGreg, Tue Jun 30 09:50
Had a huge fight with my wife about a week ago. She called me a "fake" and a "fraud" because she doesn't believe I have fibro. She seems to think that if I can get angry after she picks a fight with me then I must not have fibro. She's clueless. I never thought I would marry someone who couldn't give me emotional... more



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