Histamine, LDN & Lyme Dx – MS Therapies

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Marilyn Bachmann
Re: My Story, a new project
Sun Jun 11, 2017 14:13

I met with my volunteer biographer yesterday, and I know that we are in a synchronicity relationship because she is familiar with Edgar Casey, etc.

My goal is to create an "archetype" story that is probably kind of brutal. This is a brutal disease, and the journey is a test of your willingness to survive. I know that newly diagnosed people would not probably want to listen to this frank discussion of how truly crappy this condition makes your life become… Going to do it on a flash drive.Truthfully, I was in no way mentally prepared for the attitudes and judgments, etc. that seem to go along with this…

I don't know that anyone could possibly be prepared, and I find the literature from the MS society is very falsely reassuring. For many people, this is not necessarily a wheelchair outcome,, but for those of us that do everything possible, but still lose the war,, I would like to put that out there is a realistic possibility. I found even in the support groups, once you are in a wheelchair, they really are not very welcoming… You are there potential future and they don't want to go there. It's a very strange existence, and I would like to emphasize how isolating your existence becomes despite the spirit of the battle…

  • Re: My Story, a new project Anonymous, Sun Jun 11 12:15
    I wish you the best of Luck, I could not agree with you more about that stupid bs saying " i have ms but ms does not have me" Hearing that makes me want to hurl. I also hate hearing and I have an... more
    • Re: My Story, a new project Marilyn Bachmann, Sun Jun 18 16:27
      Yesterday, I finished hour number four, it was all ad lib/stream of consciousness… Not rehearsed in any way. So I get the flash drive on Wednesday, I will listen and evaluate and see if there is... more
    • Re: My Story, a new project Marilyn Bachmann, Sun Jun 11 14:13
      • The new project Cathy S, Mon Jun 12 11:18
        Marilyn, Glad to hear of your new enterprise. I can fully empathise with your experience with the MS society etc., and they not wanting to know about how actually bad MS can become for some of us,... more
        • Re: The new project Marilyn Bachmann, Mon Jun 12 16:18
          http://www.seattletimes.com/seattle-news/hundreds-of-immigrants-use-washington-state-to-sneak-into-canada-for-asylum/ I do not expect the Canadian healthcare system to survive after I read articles... more
          • The new project Cathy S, Mon Jun 12 18:05
            Marilyn, yes, history constantly repeats the same pattern, humanity never does learn! One would imagine after the last world war that it would have put manners on the human race! -but no, sadly, it... more
            • Re: The new project Marilyn Bachmann, Tue Jun 13 16:26
              My Volunteer may or may not come today, to cover teen years. It's an interesting exercise, remembering the entire span of yourr existence. Certainnly, my life did not go where I expected. I also... more
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