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Enbrel/ side effects
Tue Feb 28, 2012 22:27

Hey all!
Heres my issue/question:
Have been on pred for about 6 months and my dr doesn't want me on it anymore, because I have already been on it. Even though it works wonders, it damages your body in the meantime. & the weight gain is not helping anything either for a young woman. :(
She was suggesting Enbrel. I was just looking for some feedback on who is on it, do you like it, and do you have any side effects? The side effects on the info kinda scared me.

    • Re: Enbrel/ side effectsClifford Theodore Lexi-Lou, Mon Jun 22 20:52
      Hello, I know that your message was years ago, however, I am wondering how you are doing now. Our message board has slowed down a bit, but people are still on here looking to give and receive... more
    • Enbrel/ side effectstauri333, Fri Feb 22 23:02
      Ive been on humira for awhile now. I havent really had any side effects from it. Only problem is I cant get off the prednisone. I get down to 10mg a day. I seem okay at 15mg and staying there but I... more
      • Enbrelreyncg1, Sat Feb 23 08:49
        Hey Tauri, I spent over a year on embrel with no side effects. We used it when I was having difficulty getting off the Methotrexate/Prednisone mix. I had a really positive experience as I began... more
      • :(Liz, Sat Feb 23 00:35
        Are you taking methotrexate ? Every time I try 10 mg prednisone my body gets too sick. I was on 15 mg for awhile. I tried Humira. It didn't help me at all. I've had Stills for 2 years now.
        • Re: :(tauri333, Sat Feb 23 00:51
          I tried methtrexate but the nausea was horrible and my liver enzymes went up too high and my hair fell out more. I think I'm better on the combo of humira and prednisone right now. I'm able to work... more
          • Re: :(Anonymous, Sun Feb 24 20:08
            Firstly, thank you for replying. Yes, I tried methotrexate for over a year and experienced hair loss as well. My nausea was pretty bad. I'm glad to hear the humira is helping to keep you out of a... more
          • Re: :(tauri333, Sat Feb 23 00:56
            I've had stills for 16yrs now. I'm 34. I've gone through lots of remissions and flares up since first getting diagnosed plus denial on my part at times that I didn't have it and non compliance with... more
            • There is HOPEkhobbs, Tue Jun 23 08:00
              All, My husband has been in remission now for 6 years and living a very normal active life. What helped him was pred., methadrexate and a daily shot of Kineret. He was on these meds for two years and ... more
            • Re: :(Anonymous, Sun Feb 24 20:10
              oh dear! When you say remission, does that mean you were prednisone free? or does that mean you didn't have still's symptoms? I've had to be on prednisone constantly or I end up in the hospital. :'(
              • HeyLiz, Sun Feb 24 20:11
                sorry I was replying as anonymous! I didn't realize I had to put my information in for every reply :) Liz
    • Enbrelreyncg1, Wed Feb 29 09:16
      Caitlin, I have had to run through a number of drugs over the last year due to another flare-up. I actually started Enbrel about 7 weeks ago and the drug has been amazing. (After 6 months off work I... more
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