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Liz
:(
Sat Feb 23, 2013 00:35
174.238.0.102

Are you taking methotrexate ?

Every time I try 10 mg prednisone my body gets too sick. I was on 15 mg for awhile.

I tried Humira. It didn't help me at all.

I've had Stills for 2 years now.

  • Enbrel/ side effectstauri333, Fri Feb 22 23:02
    Ive been on humira for awhile now. I havent really had any side effects from it. Only problem is I cant get off the prednisone. I get down to 10mg a day. I seem okay at 15mg and staying there but I... more
    • Enbrelreyncg1, Sat Feb 23 08:49
      Hey Tauri, I spent over a year on embrel with no side effects. We used it when I was having difficulty getting off the Methotrexate/Prednisone mix. I had a really positive experience as I began... more
    • :( — Liz, Sat Feb 23 00:35
      • Re: :(tauri333, Sat Feb 23 00:51
        I tried methtrexate but the nausea was horrible and my liver enzymes went up too high and my hair fell out more. I think I'm better on the combo of humira and prednisone right now. I'm able to work... more
        • Re: :(Anonymous, Sun Feb 24 20:08
          Firstly, thank you for replying. Yes, I tried methotrexate for over a year and experienced hair loss as well. My nausea was pretty bad. I'm glad to hear the humira is helping to keep you out of a... more
        • Re: :(tauri333, Sat Feb 23 00:56
          I've had stills for 16yrs now. I'm 34. I've gone through lots of remissions and flares up since first getting diagnosed plus denial on my part at times that I didn't have it and non compliance with... more
          • There is HOPEkhobbs, Tue Jun 23 08:00
            All, My husband has been in remission now for 6 years and living a very normal active life. What helped him was pred., methadrexate and a daily shot of Kineret. He was on these meds for two years and ... more
          • Re: :(Anonymous, Sun Feb 24 20:10
            oh dear! When you say remission, does that mean you were prednisone free? or does that mean you didn't have still's symptoms? I've had to be on prednisone constantly or I end up in the hospital. :'(
            • HeyLiz, Sun Feb 24 20:11
              sorry I was replying as anonymous! I didn't realize I had to put my information in for every reply :) Liz
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