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tauri333
Re: :(
Sat Feb 23, 2013 00:56
68.171.233.205

I've had stills for 16yrs now. I'm 34. I've gone through lots of remissions and flares up since first getting diagnosed plus denial on my part at times that I didn't have it and non compliance with taking medications at first.

  • Re: :(tauri333, Sat Feb 23 00:51
    I tried methtrexate but the nausea was horrible and my liver enzymes went up too high and my hair fell out more. I think I'm better on the combo of humira and prednisone right now. I'm able to work... more
    • Re: :(Anonymous, Sun Feb 24 20:08
      Firstly, thank you for replying. Yes, I tried methotrexate for over a year and experienced hair loss as well. My nausea was pretty bad. I'm glad to hear the humira is helping to keep you out of a... more
    • Re: :( — tauri333, Sat Feb 23 00:56
      • There is HOPEkhobbs, Tue Jun 23 08:00
        All, My husband has been in remission now for 6 years and living a very normal active life. What helped him was pred., methadrexate and a daily shot of Kineret. He was on these meds for two years and ... more
      • Re: :(Anonymous, Sun Feb 24 20:10
        oh dear! When you say remission, does that mean you were prednisone free? or does that mean you didn't have still's symptoms? I've had to be on prednisone constantly or I end up in the hospital. :'(
        • HeyLiz, Sun Feb 24 20:11
          sorry I was replying as anonymous! I didn't realize I had to put my information in for every reply :) Liz
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