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Jesse In Los Angeles
Christine
Sat Mar 10, 2012 03:06

Hi Christine, I don't think it's ever easy after any number of surgeries. As a young adult I always felt alone like as if there were no other young adults with tumors. Stay positive and will keep you in my prayers.

  • Feels like groundhog's day....Christine, Sun Feb 12 16:48
    Hi there, It's been so long since I've posted here, when I found out I had a large M (well I had 2 of them) and needed surgery to have it removed I was 26yrs old so ironically approaching my 10yr... more
    • shuntstom, Tue May 7 20:57
      my wife had two surgeries 10 and eight years ago and then five months of radiation the second surgery they put a shunt in they say after annual mri every is fine she has lost most hearing in left ear ... more
      • shuntDarlene, Thu May 9 16:33
        Hi Tom, I hope your wife is doing better. I had my shunt put in several years ago. I have never been able to hear well from my left ear which is the side of the shunt.I hope this helps you. I'm sure... more
      • Your wife's hearing lossAnne Breen, Wed May 8 05:03
        Dear Tom, HELLO I just saw your recent post and your question about what could cause her recent hearing loss added to this older section of M threads from last year for Christine. I think your wife... more
        • Re: Your wife's hearing lossAnonymous, Wed May 8 18:25
          thanks anne. i made an appointment with her doctor. she had an mri 6 months ago. icalled the oncologist and he scheduled a new mri. we'll see
    • Christine — Jesse In Los Angeles, Sat Mar 10 03:06
      • JesseChristine, Sun Mar 11 12:26
        Thanks Jesse yes it's been hard to find anyone in my circle of friends and family that can relate to what I've gone thru but finding this site 10yrs ago when I was only 26yrs old helped me cope... more
        • Christine Jesse in Los Angeles, Sun Mar 11 22:04
          I know what you mean! The thing that saved my sanity was going to a NBTF BT Conference back in 2002. That's when I first met my VERY Good FRIEND Anne B. I only wished there was more for young adults... more
          • Rolling with punches I am : )Christine, Mon Mar 12 12:20
            Thanks Jesse- yes I think the first time being 26yrs old with this was a bit harder to cope, I'm 36 now and even though still somewhat of an odd thing and not so common having gone thru it twice at... more
    • ChristineClovia in NYC, Mon Feb 13 05:12
      Hi Christine. I'll do more than cross fingers for you. I'll say prayers for you, send positive energy through cyber space, and just simply wish you well. Will mark my calendar and say a prayer for... more
      • ChristineAnne breen, Sun Feb 19 14:40
        ((((((((((((((((((((((((((((((((((Dear Christine,)))))))))))))))))))))))))))))))))))))))))) Thanks for reading my long rambling words and sharing your current fears with us. We do know what it is... more
        • Thanks again AnneChristine, Sun Feb 19 16:09
          Yes I agree Anne, if this doesnt kill me it will definitely continue to make me stronger ....and God willing ...a better person- and I can say at the very least it does put things in perspective when ... more
      • Thank youChristine, Mon Feb 13 18:12
        Thank you so much Clovia, Anne and Gerda it was good to get your messages I actually got a little emotional on the bus this morning reading them on my way to work- I have a good support system at... more
        • My Dear MeningimatesAnne Breen, Thu Feb 16 10:48
          In this group we do not need to apologize for getting emotional after any personal loss, new diagnosis or bad news like a recurrence because we know it means at least we are still FULLY ALIVE and... more
          • Cushing's Diseasedanajoan, Fri Mar 9 11:43
            Hi Anne: What is your email again? I want to send you an article on Cushing's Syndrome and talk to you about it. Thanks! Love, Dana
          • AnneChristine, Fri Feb 17 21:26
            Hi Anne I just got a chance to respond about your message and it honestly made me feel somewhat human again. I've had good days and bad days but overall the people that know and love me are not used... more
            • CHRISTINEGERDA, Sun Feb 19 02:26
              DEAR CHRIS, THIS MESSAGE WAS NOT FOR ME, BUT I FEEL I WANT TO WRITE YOU A SHORT NOTE, I KNOW HOW YOU MUST FEEL STRESSED ABOUT THE SURGERY, WHO WOULDNT? PUT YOURSELF IN OUR ALMIGHTY GODS HANDS, AND... more
              • GerdaChristine, Tue Feb 21 19:35
                Thank you so much. Yes Dr Sisti has been wonderful so I trust him again with my life- he was pretty firm when he told me he would only do what's safe and to preserve my quality of life so if that... more
                • CHRISTINEGERDA, Wed Feb 22 01:07
                  AMEN MY FRIEND, TRUST IS ALL YOU CAN DO AND YOU WILL SEE HOW IT WILL ALL WORK OUT FOR GOOD, AND YOU WILL BE FINE AGAIN, DR SISTI SEEMS TO ME TO BE A DOCTOR THAT IS REALLY DOWN TO EARTH AND THAT TELLS ... more
                  • MRI/sinus areaLinda Jean, Wed Feb 22 22:08
                    Hi Everyone, The middle of January I had the 6 month MRI of the piece of the M the NS could not remove back 2007. FYI.. It grew a little from 6 months ago. I have had a bad sinus infection for... more
                    • Linda Jean- ask about mifepristoneAnne McGinnis Breen, Sun Feb 26 15:46
                      Dear Linda Jean, You know I am not a doctor or a nurse and so you know this is only a personal suggestion based on my own personal experiences with the drug. Please ask your doctors to read more and... more
                    • MRIs are lifesavingAnne McGinnis Breen, Sun Feb 26 14:58
                      Thanks for your note with your update Linda Jean, I agree with you 100% that Magnetic Resonance Imaging technology saves many lives and greatly relieves stress for us longterm bt survivors. I was... more
          • postJesse In Los Angeles, Thu Feb 16 23:16
            Anne you always have a way of saying things that are RIGHT ON!! That's what I love about our M green board!! We can vent,be our self and not be judged. Karen would have loved this post! I miss her!!... more
            • Jesse more about mifepristone Anne Breen, Fri Feb 17 07:19
              Dear Jesse, I think Mifepristone can help many people with meningiomas and/or cancer in general, helping both men and women to live longer and stronger lives. I can say that based on all the Pub Med... more
              • Re: Jesse more about mifepristone Jesse In Los Angeles, Fri Feb 17 22:12
                Thank You Anne!! You are so informative!!!
                • Medical Benefits of MifepristoneAnne McGinnis Breen, Sun Feb 19 09:36
                  http://www.biomedcentral.com/1471-2407/11/207 This extensive lab report above shows the effectiveness of Mifepristone against 10 types of cancer cells, one of them was maliganant meningioma and some... more
        • Praying for youLinda Jean, Mon Feb 13 21:44
          Hi Christine, Greetings from Columbus, OH. I had the M removed (almost) in 2007. Every 6 months I get a MRI to monitor the growth of the piece left. Dependng on the growth, I will have to consider... more
          • Thank you Linda JeanChristine, Tue Feb 21 19:32
            Thanks Linda, I see you're in Columbus ? I travel there often enough for work, love shopping at Easton : ) I do agree communicating with those that understand and share the bond helps more than any... more
          • Thanks againChristine , Fri Feb 17 14:42
            Thank you all again I've read your messages and will be keeping in touch as the clock ticks towards my next surgery- trying to enjoy my time at home until then, have a great weekend : ) Christine
            • Christinesophia, Sun Feb 19 13:42
              All the best for your forthcoming surgery my thoughts & prayers will be with you. stay positive & you will come through this with flying colours. love Sophia x
              • SophiaChristine, Tue Feb 21 19:36
                Thank you so much for your thoughts and prayers it means so much. Christine
        • ChristineClovia in NYC, Mon Feb 13 18:40
          Oh Christine! I can't even BEGIN to imagine what you're going through worrying about being able to have children or not. Don't know WHAT my life would have been without my 3 boys, well they're men... more
          • CloviaChristine, Mon Feb 13 19:12
            Thank you for your message....my boyfriend and I have talked about freezing my eggs if it came to that, he has no children and our plans right now include the possibility to have a family, he's been... more
            • NY ChristineClovia in NYC, Mon Feb 13 19:18
              Your boyfriend sounds like a true "keeper". The love he's already shown you will carry you both through whatEVER the future holds for you. Where in NY are you? Gerda is here too. I've been blessed to ... more
              • Re: NY ChristineAnonymous, Mon Feb 13 19:38
                Clovia, Yes I think If I remember correctly I think Gerda has the same NS as me, Dr Sisti, at Columbian Presbyterian- he's been great. I live in Staten Island but I spend most of my time in the city... more
                • CHRISTINEGERDA, Tue Feb 14 03:03
                  HI CHRISTIME I KNOW YOU WILL MAKE IT THROUGH ALL THIS, WE ARE SURVIVORS AND FIGHTERS, ESPECIALLY YOU WHO HAS ALRADY GONE THROUGH ENOUGH, SO LETS HOPE AND PRAY , THIS IS JUST A FALSE ALARM, ITS ALWAYS ... more
                • AhaClovia in NYC, Mon Feb 13 19:50
                  I'm in Queens. We need to find a way to meet. Waaaaaaaaaay back when I was still working I was the "go to" gal. Folks didn't even want me to take vacations. Well I retired in 2005 and the joint is... more
    • Welcome ChristineAnne Breen, Mon Feb 13 04:37
      Dear Christine, I'm glad you found us again. I had repeat recurrence too, and my second surgery was 12 years ago in 2000 and before that I had my first major craniotomy 14 years ago 1986 so I have... more
    • CHRISTINEGERDA, Mon Feb 13 00:40
      HI MY DEAR M FRIEND, WILL KEEP YOU IN PRAYERS ONCE AGAIN, THIS IS A GREAT SITE, WE SURELY NEED EACH OTHERS SUPPORT, YOU WILL BE FINE GOD WILLING, LOVE GERDA
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