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Christine
Doc follow up today
Mon Mar 19, 2012 20:32

Hi guys,

Went for my first follow up today and the NS said he was able to cut out the main vein supporting that ugly thing and take out all of the tumor so we're hoping that stops anymore regrowth there. he was excited to tell me all went so much better than he expected and the lab reports deemed the tumor as type 1 which he says is the most typical type of a meningioma one can get- the smaller tumor I have by my ear hasn't grown a vit since we found it 10yrs ago so that too was great news. he told me I can start driving and getting more active now, I am still on anti seizure meds though for a month which makes me dizzy but by April 6th I should be off of them.
I still feel really tired and my body aches a bit, there is a huge bruise down my leg where they did the angiogram and emblem but thats slowly fading.....not faded enough though to get into a bikini because i may scare small children lol but overall I'm trying to get back to feeling human so tonight I traded in my sweats for a pair of jeans and went to see a movie.....it felt so great to be out : )
I know I'm rambling but now that it's over and listening to the doctor today tell me how lucky I am and unique having been through this twice at my age puts so much in perspective. My mind is clear for the first time in months, I look forward to taking all of the disability time off that I've gotten from work to get strong again and breathe in the fresh Spring air us New Yorkers have been getting-
God is good and once I get enough energy I will be doing my own happy dance : )

Christine

  • I made it !Christine, Thu Mar 8 04:09
    Hi guys! Angio with emblem happened on Monday, sugery was on Tuesday and he got most of it out so went better than we all expected- I feel great considering its only been a day, still a bit sleepy... more
    • Doc follow up today — Christine, Mon Mar 19 20:32
      • Christine a long rambling postAnne Breen, Wed Mar 21 10:38
        Dear Christine, I am so glad to hear back from you such good news immediately post op your second time around. You will be good to go again pretty soon, once they can get you slowly weaned off as... more
        • Thanks AnneChristine, Wed Mar 21 21:50
          Hi Anne Thanks for the reply I do read all of them even in my recovery mode, it helps me a lot : ) ......I also think I might try some yoga soon : ) I really just appreciate the time you take to... more
      • CHRISTINEGERDA, Tue Mar 20 02:13
        I AM SO HAPPY FOR YOU AND ALL THE GOOD NEWS, IS YOUR DOC STILL DR SISTI, AND DID HE OPERATE ON YOU? I CAN IMAGINE HOW HAPPY YOU ARE, YOU HAVE EVERY REASON TO BE, LETS KEEP ON PRAYING FOR THE ONES... more
        • Thank you Gerda!Christine, Tue Mar 20 19:23
          Thanks Gerda and yes Dr Sisiti is still my NS he is absolutely amazing, my thoughts and prayers are strong for those struggling with these tumors I hope though it creates much strength for all of us... more
    • CHRISTINEGERDA, Fri Mar 9 02:34
      YOU CANT IMAGINE HOW HAPPY I AM FOR YOU, GOD GUIDED THE SURGEONS HANDS, AND HE WAS NOT GOIGN TO LET YOU DOWN NOW OR EVER, KEEP ON POSTING ON YOUR RECOUP, AND GOD BLESS YOU, HAVE A WONDERFUL SUMMER,... more
      • thank youChristine, Fri Mar 9 10:36
        Thanks guys- I woke up this morning and the right side of my face is swelling, I'm hoping its the steroids- no pain just looks like I got punched in my jaw- not pretty : ( Christine
        • Hello dear ElaineAnne Breen, Thu Mar 22 07:35
          Dear Elaine, It is so good to hear from you again my dear meningimate, and I'm glad to hear you are still speaking up for yourself to your doctors for what you need to control THOSE NASTY HEADACHES.... more
        • face swellingElaine (Las Vegas), Sat Mar 10 08:36
          Hi Christine! I am so happy to read how well you are doing? If anyone ask,"What happen to your face?" Just tell them you forgot to dunk! I was on the Crown Princess and caught the Nora Virus was... more
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