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My frustration is growing
Wed May 2, 2012 13:28

My dear Meningimates,
It has happened again, I'm still waiting for my Mifeprex (mifepristone) refills after ordering my next 3 month supply several weeks ago. If it wasn't for all the political issues and US government trade restrictions I could get it faster and much cheaper from India or China where it is only $6 or $7 a pill instead of the $15 I have to pay out of my own pocket here since it is still and off label use for treating meningioma. Even though I have legal USA FDA approval based on research evidence to take it as an investigational use for meningioma.
I'm just an impatient patient, and maybe even a perpetual patient as someone else wrote on another m list. lol
I'm still here and I'm still keepin on! Thats the best I can do after living with this "uninvited guest in my attic" for 26 years now.
Another new product Korlym (mifepristone) is now available in California for those with a pituitary adenoma brain tumor and Cushings syndrome.
GBYAY Anne McGinnis Breen
Please visit my blog at
http://gbyay.blogspot.com

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