TRUE Kids Discussion Board - Re: mom of Citrullinemia kids

Lease this WebApp and get rid of the ads.

Hi thanks for sharing ur experience, my son also has citrullinemia. I just have a question you mentioned that ur kids eat poultry- I was under the impression that this was one of the foods kids with UCD's woudl never be able to eat considering the high protein content in meat and poultry? My son has not had a hyperammpnemic episode since initial diagnosis however we are thinkign long term it will be better to get transplanted as the condition causes all other kinds of problems or so it seems

Lease this WebApp and get rid of the ads.

chemical exposure during pregnancy — Karrie-Ann, Tue May 11 9:09pm

Hi I don't know if any of you remember us but my daughter is Sanae. She was diagnosed with citrullinemia when she was 7 days old. My question to any family with a child that has her condition is have ... more
- mom of Citrullinemia kids — all4Yah, Mon Dec 13 3:51pm
  
  Hi all, My two kids have the same exact genetic mutations one from me and one from my husband. Our oldest, our daughter who is 4, does really well and has not had any hyper ammonia problems. I am... more
- - Re: mom of Citrullinemia kids — nadia, Sat Aug 6 2:11pm
- ASA Lyase — Kelly Corby, Sun May 16 6:44am
  
  My daughter was diagnosed when she was 17 days old! My daughter to can eat some dairy and she loves chicken nuggets! For years my daughter didn't have a high ammonia then one day just a few weeks ago ... more
- - citrullinemia — all4Yah, Fri Aug 5 7:14am
    
    My kids have still been on maintenance of arginine. How is your daughter doing? I hope excellent! My daughter displays attributes of Aspergers now. Well, she always has really even though her ammonia ... more
- Re: chemical exposure during pregnancy — mum to citrullinemia baby, Thu May 13 9:01am
  
  hi i have a son with citrullinemia, myself my husband and my son have all had the dna testing which has confirmed myself and my husband are carriers of this illness. we are also going to have our... more
- - Re: chemical exposure during pregnancy — Karrie-Ann, Thu May 13 9:06pm
    
    My daughter does have the disorder. She was 7 days old when she was diagnosed. The docs say they caught it in enough time to where it didn't do any neurological damage. Her's was found through PKU... more
  - - Re: chemical exposure during pregnancy — citrullinemia mum, Sat May 15 2:54pm
      
      thanks, my son is nearly 15 months but is still not working so im getting very concerned about his development. did ur daughter have any development delays? my sons ammonia was 671 wen diagnosed.... more
    - - Re: chemical exposure during pregnancy — Karrie-Ann Soto, Wed Dec 15 6:50am
        
        My daughter's ammonia levels were in the 400's when she was first diagnosed. Her doc feels she suffered no brain damage.Before I got the call from the pediatrician saying I had to bring her to CHB,... more

Click here to receive daily updates