TRUE Kids Discussion Board - re:Liver transplant

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Thanks and we wish the very best for your family also. It is indeed a hard road to travel and there is some comfort in not having to travel it quite alone.
Please let us know how you make out, we will continue to keep you in our prayers.
Best to All!
Karen

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Citrullanemia type 1 liver transplantation — malikzafar2000, Sat Mar 10 6:09pm

Hi There. My name is khalid.My son has born on 27 feb 2012 with citrullanemia type 1 doctor has control the amonia level from birth because they knew it.(Its an sad story because our 1st son... more
- Re: Citrullanemia type 1 liver transplantation — Nadia, Fri Mar 30 6:47am
  
  Hi,we live in the uk our 3 year old son has citrullinemia. His ammonia reached 671 and it has had some bad effect on him. We were told liver transplant isn't suitable for him because they were... more
- - Marta transplant — mother mary, Thu Jun 13 1:57pm
    
    Please read my previous post. Feel free to use Marta as an example of the need for transplant. She is 44 and her situation worsened over time. No one is sure why this is but know that this did happen ... more
  - Liver transplant — Ludy Castaneda, Sat Mar 31 7:40am
    
    Our daughter, Jessica, is 19 yrs old. She has ASA. She received a liver transplant 11 yrs ago and it has been the best decision we made. She did have complications right after surgery and what... more
  - Hi Nadia — malikzafar2000, Fri Mar 30 6:48pm
    
    Very sad to hear that your child had some problem because of high ammonia level.Why his level went up? You did,t know it that he was affected with this condition. I shall pray for him. How is he... more
  - - Re: Hi Nadia — Nadia, Sat Mar 31 4:49am
      
      He was our first child and we didn't know he was poorly until he became very Ill at home. We had never heard of this illness before and noone in either of our families hav ever had it. He went on the ... more
    - - Hi Nadia — malikzafar2000, Sat Mar 31 1:55pm
        
        Yes i shall pray for your son and i hope God shall show a miracle . He ,ll get well soon. Our first son was born in dec 2007 and he died after 3 days because of citrullanimia, we brought him home... more
      - Re: Hi Nadia — Nadia, Sat Mar 31 3:10pm
        
        Thankyou really appreciate ur prayers and kind thoughts it means a lit and always helps to meet n talk to people who truly understand. We have another baby who is healthy, me n my husband r not... more
- Citrullinemia & liver transplantation — Karen Worley, Mon Mar 12 8:43am
  
  Hi Khalid, We have a granddaughter we've been raising who also has citrullinemia. She's 13 years old now, I still can't believe it. Yes this has to be the hardest thing to live with on a daily basis... more
- - Marta transplant — Mary, Thu Jun 13 1:49pm
    
    This seems a good time to let you all know that, last Friday, Marta received her new liver. Today, Thursday, she is doing extremely well. Marta is the oldest living person with citrullinemia. Our... more
  - - Re: Marta transplant — nadia, Fri Jun 14 6:58am
      
      so happy to hear Marta has finally had her tansplant I really hope it all goes wel for her and she recovers soon, my thughts and prayers are with her xx
    - Re: Marta transplant — kara, Thu Jun 13 10:38pm
      
      Marta, Congrats on your new liver. My daughter had her transplant almost 3 years ago. She is doing great! I am hoping that you will have a speedy recovery and be able be able to feel better quickly.... more
    - Marta — Karen Worley, Thu Jun 13 4:25pm
      
      Dear Mary, We are so excited for you all! I pray she continues to do extremely well! I was so impressed with Marta when I first "talked" with her online about 14 years ago and she gave us such hope... more
  - Liver transplant — malikzafar2000, Thu Mar 29 4:06pm
    
    Hi karen, Thank you for your support and guidance.I shall pray for your granddaughter for long and happy life. We had meeting with our doctor and she has agreed to refer us to kings collage hospital... more
  - - re:Liver transplant — Karen Worley, Thu Mar 29 4:46pm
  - Citrullanemia type 1 — malikzafar2000, Mon Mar 12 5:17pm
    
    Hi, Thanks for all the information . I shall check on usd foundation.Citrullanemia is a very rare condition in uk most of doctors does not know about it but i found so many people in usa. I shall... more

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