Our daughter, Jessica, is 19 yrs old. She has ASA. She received a liver transplant 11 yrs ago and it has been the best decision we made. She did have complications right after surgery and what should've been a 2 wk hospital stay turned into 2 months. Then she struggled with a bacterial infection for almost 6 months after going home. But once the doctors figured that out its been good, very good. She has never again been hospitalized for high ammonia. Before surgery there were more than 25 hospital stays. We live in San Antonio,Texas, USA. We are fortunate to have a very good teaching hospital in town. The University of Texas Health Science Center. I'd recommend it. Good luck in your quest for your child. Trust your instincts and push for what your thinks is best.
Please read my previous post. Feel free to use Marta as an example of the need for transplant. She is 44 and her situation worsened over time. No one is sure why this is but know that this did happen ... more
Liver transplant Ludy Castaneda,Sat Mar 31 7:40am
Very sad to hear that your child had some problem because of high ammonia level.Why his level went up? You did,t know it that he was affected with this condition. I shall pray for him. How is he... more
He was our first child and we didn't know he was poorly until he became very Ill at home. We had never heard of this illness before and noone in either of our families hav ever had it. He went on the ... more
Yes i shall pray for your son and i hope God shall show a miracle . He ,ll get well soon. Our first son was born in dec 2007 and he died after 3 days because of citrullanimia, we brought him home... more
Thankyou really appreciate ur prayers and kind thoughts it means a lit and always helps to meet n talk to people who truly understand. We have another baby who is healthy, me n my husband r not... more