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marta
jennifer
Tue Mar 12, 2013 10:38am
98.246.41.177

how old is josh? what urea cycle disorder did he have? i have citrullinemia

    • Re: jenniferJennifer McElroy, Wed Mar 13 3:10pm
      Marta, Josh just turned 15 on March 7th. He was born with Argininosuccinicaciduria. I have been thinking a lot about you and praying hard that you will be transplanted soon and that all goes well.... more
      • for jennifermarta, Thu Mar 14 7:46am
        jennifer, would you do it over if you had to tranplant him over again? i am scared to be transplanted as an adult. ny citrullinemia keeps getting worse. i go to the hospital once or twice a month... more
        • Re: for jenniferJennifer McElroy, Fri Mar 15 10:52am
          Marta, Just like you, Josh's disease was getting uncontrollable. We knew transplant was the only alternative to try to make Josh's health turn around. Transplant is a very scary thing and I can... more
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