Jennifer McElroy
Re: jennifer
Wed Mar 13, 2013 3:10pm

Josh just turned 15 on March 7th. He was born with Argininosuccinicaciduria. I have been thinking a lot about you and praying hard that you will be transplanted soon and that all goes well. Josh was dismissed Monday from the hospital but must live in the Kansas City area for at least two weeks after being dismissed. We live in southcentral Kansas, about 3.5 hours from KC. It has been nice to be close enough for Josh's sisters and other family to visit. But we sure do miss home! I can't say enough about the transplant/liver care team here at Children's Mercy Hospital. They are nothing short of amazing!

  • jennifermarta, Tue Mar 12 10:38am
    how old is josh? what urea cycle disorder did he have? i have citrullinemia
    • Re: jennifer — Jennifer McElroy, Wed Mar 13 3:10pm
      • for jennifermarta, Thu Mar 14 7:46am
        jennifer, would you do it over if you had to tranplant him over again? i am scared to be transplanted as an adult. ny citrullinemia keeps getting worse. i go to the hospital once or twice a month... more
        • Re: for jenniferJennifer McElroy, Fri Mar 15 10:52am
          Marta, Just like you, Josh's disease was getting uncontrollable. We knew transplant was the only alternative to try to make Josh's health turn around. Transplant is a very scary thing and I can... more
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