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Anonymous
OTC
Mon Apr 22, 2013 2:48pm
5.67.136.102

Hi, my little girl is 5yrs old and has OTC. The doctors have told me that I need to consider a liver transplant. If anyone can give me any advice or help I would greatly appreciaite it.

    • OTCPete, Wed Apr 24 6:16pm
      Hi, I have two daughters that were transplanted for CPS. We had reached a point where the UREA Cycle medications were not working and the transplant was the best option. One daughter was trasnplanted ... more
    • Re: OTCAnonymous, Wed Apr 24 4:18am
      Hello there My daughter was born with OTC and had a liver transplant in 2009 aged 6. The first year I regretted making the decision due to all the complications she had. Now, you would never know she ... more
    • for anonymousmarta, Tue Apr 23 9:09am
      hi there, i am allmost 44 yeaars old and i on the liver transplant list cause i am in the hosspital more then out with high ammonia due to my citrullimia. i got listed on octber the 3rd of last year... more
    • Re: OTCAnonymous, Tue Apr 23 8:42am
      My son had citrullinemia, he was transplanted at 20 months. In my experience dealing with the transplant was much easier than dealing with the urea cycle disorder. He is 3-1/2 now and doing great.... more
      • citrulllinemiamarta, Tue Apr 23 9:17am
        hi there i was wondering if you would transplant again if you had to? i have citrullinemia and i have been on the list since october 3rd of last year. i am uncertain as an adult wheather or not i... more
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