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marta
citrulllinemia
Tue Apr 23, 2013 9:17am
98.246.41.177

hi there i was wondering if you would transplant again if you had to? i have citrullinemia and i have been on the list since october 3rd of last year. i am uncertain as an adult wheather or not i want to go through with it. how is his diet now after transplant? how long was he in the hospital for?

  • Re: OTCAnonymous, Tue Apr 23 8:42am
    My son had citrullinemia, he was transplanted at 20 months. In my experience dealing with the transplant was much easier than dealing with the urea cycle disorder. He is 3-1/2 now and doing great.... more
    • citrulllinemia — marta, Tue Apr 23 9:17am
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