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Anonymous
Re: OTC
Wed Apr 24, 2013 4:18am
31.109.113.254

Hello there

My daughter was born with OTC and had a liver transplant in 2009 aged 6. The first year I regretted making the decision due to all the complications she had. Now, you would never know she had a transplant, when it comes to food she is like a little hoover and we've not had a hospital admission for almost two and a half years.

You have to do what is right for you and your child, get all the information that you need both the pros and the con to amaze the best informed decision that you can. I would also advise that should you go ahead with a transplant then prepare yourself for for child to get worse for a while before they get better. It may not happen but should it be prepared.

All the best

Trish

  • OTCAnonymous, Mon Apr 22 2:48pm
    Hi, my little girl is 5yrs old and has OTC. The doctors have told me that I need to consider a liver transplant. If anyone can give me any advice or help I would greatly appreciaite it.
    • OTCPete, Wed Apr 24 6:16pm
      Hi, I have two daughters that were transplanted for CPS. We had reached a point where the UREA Cycle medications were not working and the transplant was the best option. One daughter was trasnplanted ... more
    • Re: OTC — Anonymous, Wed Apr 24 4:18am
    • for anonymousmarta, Tue Apr 23 9:09am
      hi there, i am allmost 44 yeaars old and i on the liver transplant list cause i am in the hosspital more then out with high ammonia due to my citrullimia. i got listed on octber the 3rd of last year... more
    • Re: OTCAnonymous, Tue Apr 23 8:42am
      My son had citrullinemia, he was transplanted at 20 months. In my experience dealing with the transplant was much easier than dealing with the urea cycle disorder. He is 3-1/2 now and doing great.... more
      • citrulllinemiamarta, Tue Apr 23 9:17am
        hi there i was wondering if you would transplant again if you had to? i have citrullinemia and i have been on the list since october 3rd of last year. i am uncertain as an adult wheather or not i... more
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