Mon Apr 29, 2013 10:27am

hi my name is marta and i have citrullinemia and was born with it but not dignosed until 3 months of age because there was no newborn screening when i was born and nobody new anything about citrullinemia. i am the oldest living with citrullinemia and my citrullinemia has became unmagble in the last two years. i am awaiting a new liver. i was listed on october 3rd of last year. does anybody know of any support group for people waiting for a new liver? i am finding the wasiting period very stressful. marta

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