Thu May 2, 2013 10:53am

Thanks Marta! You & I had connected about 11 years ago or so when I first talked with Joe online. Destiney also has citrullinemia, don't know if I said that in the previous message. I can't imagine having had to deal with this for 44 years! It seems to me it is quite a testament to your parents and yourself! I hope you also get the call soon and get to the other side of the transplant where life is good and you and your family can take a deep breath and relax for a bit!
Best Wishes,

  • for karenmarta, Thu May 2 9:12am
    hi karen, thanks for sharing your story. i am allmost 44 year old women with citrullinemia. i am the oldest living with this disorder. my citrullinemia was under control until two years ago when i... more
    • Marta — Karen Worley, Thu May 2 10:53am
Click here to receive daily updates