Re: for nadia
Wed May 15, 2013 10:30pm

I am currently in New York, but planning to move to Texas. and my baby is 3 months old, we are from Pakistan. I want her to be transplanted because we are scared of hyperammonemia episode.

  • for nadiamarta, Wed May 15 3:40pm
    hi nadia, i am a allmost 44 year old women born with citrullinemia and i am listed for a transplant. i am getting transplanted at oregon universty hospital. where are you from? why are you... more
    • Re: for nadia — Nadia, Wed May 15 10:30pm
      • for nadiamarta, Sat May 18 9:53am
        nadia, has your child had a an eppisode of high ammonia since her dignoses?marta
        • Re: for nadiaAnonymous, Sun May 19 4:57pm
          Not episode, but her ammonia is staying high
          • for nadiamarta, Mon May 20 7:18pm
            nadia, so has she been hospitalized for her high ammonia? i go into the hosptial once to three times a month with high ammonia. i get tube feeds at night while i sleep of duocal, argenine, soduim... more
            • Re: for nadiaAnonymous, Mon May 20 10:32pm
              Thank you very much Marta. Good luck for everything. Nadia
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