for nadia
Sat May 18, 2013 9:53am

nadia, has your child had a an eppisode of high ammonia since her dignoses?marta

  • Re: for nadiaNadia, Wed May 15 10:30pm
    I am currently in New York, but planning to move to Texas. and my baby is 3 months old, we are from Pakistan. I want her to be transplanted because we are scared of hyperammonemia episode.
    • for nadia — marta, Sat May 18 9:53am
      • Re: for nadiaAnonymous, Sun May 19 4:57pm
        Not episode, but her ammonia is staying high
        • for nadiamarta, Mon May 20 7:18pm
          nadia, so has she been hospitalized for her high ammonia? i go into the hosptial once to three times a month with high ammonia. i get tube feeds at night while i sleep of duocal, argenine, soduim... more
          • Re: for nadiaAnonymous, Mon May 20 10:32pm
            Thank you very much Marta. Good luck for everything. Nadia
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