Joe Marquez
Re: for joe
Mon Jul 8, 2013 8:54am

That is so cool you get to have as many scambled eggs as your heart desires!

Perhaps you can still stay in touch with your metabolic team. Justin has seen his old metabolic team a few times in the 12 years it has been since he had his liver transplant.

Glad you were able to go down on the prednisone. If you get a rejection episode one of the ways they might get it to go away is to give you IV predinsone called solumedrol.

We would definitely do the transplant all over again. We were a little concerned last week because Justin's kidney numbers were elevated but it appears this was probably temporary because of an infection he had because now they're back down.

Justin's favorite food is Chinese food like orange chicken and mushroom chicken. And he's never met a slice of pizza he didn't like!

They just lowered his magnesium.

Here's wishing you lots of healing and as smooth of a first few months after your transplant as possible!

- Joe

  • for joemarta, Thu Jul 4 4:22pm
    hi joe, how long ago was your son transplanted? I was transplanted june 7th. I miss my citrullinemia and I lost my metabolic dr's cause they were like a second family to me.every time I eat protein... more
    • Re: for joeJennifer McElroy, Mon Jul 8 10:07pm
      Marta, I am so happy to hear that you have finally been transplanted. I know Josh is a new kid, feeling so much better than he ever has! I pray things continue to go smoothly and take this change one ... more
    • Re: for joe — Joe Marquez, Mon Jul 8 8:54am
      • liver transplantfor joe, Wed Jul 10 10:45am
        hi joe, well they keep increasing my magnsuim all the time in clinic cause it's low but I have had low magnsuim since 2006 and have been on magnsuim since then and even though I am on maggnsium my... more
        • re: in ER throwing up bileJoe Marquez, Thu Jul 11 9:14am
          Marta, You offer a unique opportunity for us parents to talk to an adult about what going through the transplant experience is like. I'm very sorry to hear yesterday you had to endure throwing up... more
          • for joemarta, Thu Jul 11 5:28pm
            joe, no they didn't really know the cause of throwing up bile since I had not eaten or drank anything all day. I am in Oregon?where are you at? does your son still see the liver dr's. they keep... more
            • Re: for joeJoe Marquez, Fri Jul 12 9:54am
              Marta. . .I hope they can figure out how to keep you from throwing up bile. We are in Denver. Justin sees his liver doctor once a year. Oh no. . .hope there's a way to make the magnesium more... more
            • martamindy, Fri Jul 12 7:53am
              Hi Marta, What drugs are you on? How much Prograf? What other antirejection drugs? lucky your staples came out quickly, brett was longer. Brett is almost 2 years post transplant. He is doing well... more
              • RE: BrettJoe Marquez, Thu Jul 18 9:02am
                Love reading that Brett is doing well! Amen.
                • thanksmindy, Sat Jul 20 8:57pm
                  Thanks Joe, Remember those daily emails of panic? He had such a hard first year post transplant.... between the weekly paras, CMV, prograf toxicity, too many hospital stays it was really hard. I am... more
                  • Re: thanksJoe Marquez, Mon Jul 22 11:02am
                    I hate that that first year was so rocky. Wonderful to read he is back to work and all activities and weaning meds down! Maybe in awhile he can even get those draws down to every 3 months or so.... more
                    • joemindy, Thu Jul 25 3:33pm
                      Thank you. pretty unbelievable that I remember when justin was a baby. We've come a long way!!!
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