for joe
Thu Jul 11, 2013 5:28pm

joe, no they didn't really know the cause of throwing up bile since I had not eaten or drank anything all day. I am in Oregon?where are you at? does your son still see the liver dr's. they keep raising my magsuim. I am up to 12 pills 3 times a day but it is giving me the runs.marta

  • re: in ER throwing up bileJoe Marquez, Thu Jul 11 9:14am
    Marta, You offer a unique opportunity for us parents to talk to an adult about what going through the transplant experience is like. I'm very sorry to hear yesterday you had to endure throwing up... more
    • for joe — marta, Thu Jul 11 5:28pm
      • Re: for joeJoe Marquez, Fri Jul 12 9:54am
        Marta. . .I hope they can figure out how to keep you from throwing up bile. We are in Denver. Justin sees his liver doctor once a year. Oh no. . .hope there's a way to make the magnesium more... more
      • martamindy, Fri Jul 12 7:53am
        Hi Marta, What drugs are you on? How much Prograf? What other antirejection drugs? lucky your staples came out quickly, brett was longer. Brett is almost 2 years post transplant. He is doing well... more
        • RE: BrettJoe Marquez, Thu Jul 18 9:02am
          Love reading that Brett is doing well! Amen.
          • thanksmindy, Sat Jul 20 8:57pm
            Thanks Joe, Remember those daily emails of panic? He had such a hard first year post transplant.... between the weekly paras, CMV, prograf toxicity, too many hospital stays it was really hard. I am... more
            • Re: thanksJoe Marquez, Mon Jul 22 11:02am
              I hate that that first year was so rocky. Wonderful to read he is back to work and all activities and weaning meds down! Maybe in awhile he can even get those draws down to every 3 months or so.... more
              • joemindy, Thu Jul 25 3:33pm
                Thank you. pretty unbelievable that I remember when justin was a baby. We've come a long way!!!
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