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marta
for mindy
Thu Aug 1, 2013 5:47pm
71.237.138.184

mindy, so you mean he was 30 when he was transplted. dod he have citrullinemia like me? I had citrullinemia for 44 years.

  • Re: for mindaymindy, Wed Jul 31 7:51pm
    I am sorry that you are having pain. I know it felt strange for brett thAT after 30 years no more urea cycle but you will get used to that. You are a strong woman!
    • for mindy — marta, Thu Aug 1 5:47pm
      • martamindy, Thu Aug 1 7:42pm
        Yes Marta, He had his transplant almost 2 years ago at the age of 30 He had arginase deficiency and was on a very restricted diet, Now he love bagels and cream cheese!
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