Karen Worley
Wed Oct 2, 2013 3:10pm

Hi Patricia, I had to chuckle when I read your post. Our gran daughter is almost 15 and is on the waiting list. The said they expect it to happen in a months time or so. Every night at supper time as I weigh things out for her in hopes that she will eat it I keep telling myself, soon, very soon this won't be an issue for her! She is also Autistic and goes through cycles of wanting to eat EVERYTHING to eating nothing, so frustrating, and I'm praying that will change when she is allowed to eat anything. But then there is a part of me that is scared to death about not having to think about protein content and all that! Such a mystery life in store for her just waiting around the corner!! We just can't wait to be in your shoes!
Best of luck in overcoming your guilt!!
Karen Worley

  • RandomPatricia V Davis, Tue Oct 1 3:38am
    This is really random but I felt this group would understand how I felt. My daughter is four years post transplant and now has a very healthy appetite. I made a shepherds pie the other week and it... more
    • post TX guilteileen, Thu Oct 10 6:33pm
      oh boy can we relate. Sometimes I think of it as post traumatic stress disorder. For a critical period of time the most important thing in our worlds was to deny them those foods and that does not go ... more
      • post transplantelien, Sat Oct 19 11:27am
        elien, I agree with what you say . I was conditioned to eat low protein diet for 44 years. I am only 4 months out. it is strange retraining my brain to being able to eat what I want now. I can never... more
    • RE:Random — Karen Worley, Wed Oct 2 3:10pm
    • patriciamarta, Wed Oct 2 10:56am
      paricia, I am almost 4 months post transplant and I don't weight out my protein anymore since I don't have citrullinemia. how come you weight out your daughter's protein's? have you considered... more
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