Karen Worley
Destineys gift
Sun Dec 22, 2013 10:25am

I just wanted to let you all know that Destiney has received her gift of life. She was originally transplanted 1 week ago today. The surgery went perfect. Upon moving to PICU she started to crash and they took her back to the OR. The surgeon said as soon as he saw the liver it was obvious it wasn't working and they relisted her. Within hours they had to take her back in and remove the liver because it was killing her. We prayed and waited and watched the most awesome team work their hardest to keep her going and she worked her hardest to not give up. Destiney is now the record holder for surpassing 94 hours without a liver and surviving. She received her second gift early Friday morning and is still fighting hard. They want her to rest and get off a lot of fluid so they can go back to the OR and reconstruct the bile ducts and close her up. She is by all means our Christmas miracle and I had to share! God is good and he is holding onto our little girl!

    • DestineyEileen, Mon Dec 30 6:53pm
      Karen, Please let us know how things are going. What a fighter you have! We wish you a Happy, Healthy New Year.
      • DestineyKaren Worley, Tue Dec 31 9:36am
        Hi Eileen, At the moment we are outside the OR waiting for the 7th time of her being on there. The plan was to get a biopsy, wash out and hopefully partial close if the swelling is down enough and... more
        • Destineyeileen, Wed Jan 1 12:50pm
          Karen, it sounds like you also have done remarkably well given what's come your way - I wish all of the parents who visit this site a happy and healthy new year. We do what we must for these amazing... more
        • martakaren, Wed Jan 1 10:26am
          is you daughter waiting to be tranplanted
          • DestineyKaren Worley, Wed Jan 1 2:44pm
            Hi Marta, Destiney had her first transplant December 15th. Unfortunately she was in the 3% that it just did not work out for no known reason. Then they had to remove it because it was literally... more
    • Re: Destineys giftJoe Marquez, Mon Dec 23 9:14am
      God bless you Karen and your precious Destiney. My goodness y'all have had to go through the wringer on this!! What a fighter for all these years and now as they get her gift of life optimally... more
      • for joemarta, Tue Dec 24 2:45pm
        that is so good to hear that another urea cycle patient was transplanted. how 0ld is destiney? when was she transplanted. I wish her a happy recovery
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