Mon Dec 30, 2013 6:53pm

Karen, Please let us know how things are going. What a fighter you have! We wish you a Happy, Healthy New Year.

  • Destineys giftKaren Worley, Sun Dec 22 10:25am
    I just wanted to let you all know that Destiney has received her gift of life. She was originally transplanted 1 week ago today. The surgery went perfect. Upon moving to PICU she started to crash and ... more
    • Destiney — Eileen, Mon Dec 30 6:53pm
      • DestineyKaren Worley, Tue Dec 31 9:36am
        Hi Eileen, At the moment we are outside the OR waiting for the 7th time of her being on there. The plan was to get a biopsy, wash out and hopefully partial close if the swelling is down enough and... more
        • Destineyeileen, Wed Jan 1 12:50pm
          Karen, it sounds like you also have done remarkably well given what's come your way - I wish all of the parents who visit this site a happy and healthy new year. We do what we must for these amazing... more
        • martakaren, Wed Jan 1 10:26am
          is you daughter waiting to be tranplanted
          • DestineyKaren Worley, Wed Jan 1 2:44pm
            Hi Marta, Destiney had her first transplant December 15th. Unfortunately she was in the 3% that it just did not work out for no known reason. Then they had to remove it because it was literally... more
    • Re: Destineys giftJoe Marquez, Mon Dec 23 9:14am
      God bless you Karen and your precious Destiney. My goodness y'all have had to go through the wringer on this!! What a fighter for all these years and now as they get her gift of life optimally... more
      • for joemarta, Tue Dec 24 2:45pm
        that is so good to hear that another urea cycle patient was transplanted. how 0ld is destiney? when was she transplanted. I wish her a happy recovery
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