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Karen Worley
Destiney
Tue Dec 31, 2013 9:36am
184.185.222.210

Hi Eileen, At the moment we are outside the OR waiting for the 7th time of her being on there. The plan was to get a biopsy, wash out and hopefully partial close if the swelling is down enough and possibly a tracheotomy. All subject to change at a given moment. She has done remarkably well given all that's come her way and she is everyone here's Christmas Miracle! The last 24 - 48 hours she has been becoming more alert and aware of her surroundings and is having issues with stress ulcer they think. She has coagulation issues so that is a concern they're watching carefully.
It's been quite a bumpy ride, not at all what we had hoped for but she has proved her strength time and again and is making everyone earn their pay checks!

  • DestineyEileen, Mon Dec 30 6:53pm
    Karen, Please let us know how things are going. What a fighter you have! We wish you a Happy, Healthy New Year.
    • Destiney — Karen Worley, Tue Dec 31 9:36am
      • Destineyeileen, Wed Jan 1 12:50pm
        Karen, it sounds like you also have done remarkably well given what's come your way - I wish all of the parents who visit this site a happy and healthy new year. We do what we must for these amazing... more
      • martakaren, Wed Jan 1 10:26am
        is you daughter waiting to be tranplanted
        • DestineyKaren Worley, Wed Jan 1 2:44pm
          Hi Marta, Destiney had her first transplant December 15th. Unfortunately she was in the 3% that it just did not work out for no known reason. Then they had to remove it because it was literally... more
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