Joe M.
Mon Jun 2, 2014 1:31pm

Congratulations on the approach to your 1 Year Post Transplant milestone. Wow. . .Italy!? That had to have lots of enjoyable moments. Hope your body gets better and better. My 15 year-old Justin who was transplanted for argininosuccinic aciduria 13 years ago. . .gets to go transplant and epilepsy camps this summer. . .it will be lots of fun for him.

That darn hip of yours! I turn 44 toward then end of the month and can relate to not having a body of a spring chicken anymore.

- Joe

  • allmost one year since transplantmarta, Thu May 29 12:44pm
    hi just wanted to let everyone on this board know that It wii hll have been one year on june 7th 214 when I was transplanted because my citrullinemia type 1 got out of control and caused the begning... more
    • CONGRATULATIONS! — Joe M., Mon Jun 2 1:31pm
      • joemarta, Tue Jun 3 9:09am
        joe yeah this darn hip personally I think citrullinemia did 44 myyears of damage. had fun in Italy but because of having citrullinemia for 44 years I was not able to keep with my cousins when they... more
        • Re: joeAnonymous, Wed Jun 4 10:01am
          It might take awhile to build up your endurance. Justin sometimes lags behind his racing brothers and he leaves to sleep in for 12+ hours whenever he can. He take Rapamune, a little bit of Prograf,... more
          • anonymousmarta, Thu Jun 5 8:52am
            hi there, yes I too tire easly as if I stil had citrullinemia. I seem to need at least 10 hours of sleep a night. I do pt for my bad hip but that exsuestes me for the next 3 days so I can't do... more
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