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marta
joe
Tue Jun 3, 2014 9:09am
71.237.138.184

joe yeah this darn hip personally I think citrullinemia did 44 myyears of damage. had fun in Italy but because of having citrullinemia for 44 years I was not able to keep with my cousins when they were walking or my nieces and nephews. still tire easly. I turned 45 last month and last month back home in Italy we had a dinner party at a restaurant and we celebrated my cousin 44th birthday on may 20 and my 45 on may 29th. is Justin having a hard time with his energy level and being able to keep up.does Justin still take liver medicine? I am on two different kinds and plus I am on 5 mg of predinose. I am having bad issues with headaches even though I am not on prograf I am on rampamuine. and I am having issues with my acid reflux acting up. oh well it is not said that liver transplant takes away every health problem. I still have water damage on the brain from high ammonia's. hope Justin has fun. marta

  • CONGRATULATIONS!Joe M., Mon Jun 2 1:31pm
    Marta, Congratulations on the approach to your 1 Year Post Transplant milestone. Wow. . .Italy!? That had to have lots of enjoyable moments. Hope your body gets better and better. My 15 year-old... more
    • joe — marta, Tue Jun 3 9:09am
      • Re: joeAnonymous, Wed Jun 4 10:01am
        It might take awhile to build up your endurance. Justin sometimes lags behind his racing brothers and he leaves to sleep in for 12+ hours whenever he can. He take Rapamune, a little bit of Prograf,... more
        • anonymousmarta, Thu Jun 5 8:52am
          hi there, yes I too tire easly as if I stil had citrullinemia. I seem to need at least 10 hours of sleep a night. I do pt for my bad hip but that exsuestes me for the next 3 days so I can't do... more
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