for joe
Thu Jun 19, 2014 9:50am

hi joe, thank you. right now for three weeks I have been dealing with dealbatating migraines thought was the prograff so I went off of it and onto rampamunee for 2 months I have been on that. these headaches are pretty much all day and I have to lay in bed in the dark and away fromy noise. they nurologist finaly put me on a medicine to take that is a anti sezuier medicine but It also works for migraines. only been on it for 2 days seems to work but to early to tell cause they slowly have to increase the dose over 4 weeks.i never though I would be put on a stand still for awhile. pt for hip is on hold for now. marta

  • CONGRATULATIONS!Joe Marquez, Wed Jun 18 10:34am
    We never got a response from our blessed donor family either. Here's to your new life and that hoping you get more endurance as each day passes! - Joe
    • for joe — marta, Thu Jun 19 9:50am
      • seizure medicine - migrainesJoe Marquez, Fri Jun 20 9:25am
        Justin takes a seizure medicine. I wonder if he would have had the migraines without it. Justin used to have rejection episodes with Prograf but hasn't since his main immunosuppresent has been... more
        • for joemarta, Sat Jun 21 1:15pm
          joe, what anti seziuer medicine is Justin on? I am on Topamax. I have been on 25 mg for 4 days and so far although to early seems to work. the nerulogist over the next 4 weeks is working me up to 100 ... more
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