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eileen
question for Peter Bicknell
Mon Apr 13, 2015 8:48am
98.21.168.73

Pete, hopefully you are still checking this website. I spoke with you a couple of years ago about our CPS kids. I hope that your daughters are doing well. I have been contacted by "CLIMB", an organization in England which supports metabolic diseases; they have a family with a 3 year old girl who has CPS and wants to talk to a similar family. I told them that my son is 18 now and was transplanted 17 years ago, so I'm not sure how much help we would be. would you be willing to talk to them, by email or phone? if so, I'll give you the contact information for my contact at CLIMB.
thanks.

    • Gladly willing to talkPete, Mon Apr 13 10:21pm
      Hi Eileen, Myself or my wife would be more than happy to talk with other families about our experiences. Both girls are doing very good and are now 16...with drivers licenses. It's been awhile since... more
      • climb contacteileen, Wed Apr 15 10:00am
        thanks pete, I'll pass this information on to Rachel at CLIMB and here is her email (rachel@climb.org.uk)(for others reading this, please go through the climb website if you want to learn more about... more
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