Hi Lenora, how are you? How is your daughter doing? i WAS wonering how YOU manage her low protien diet at school? i use to bring my own and by the time i was in jr high and high school there was the salad bar line. I am suprised that your daughter does not like fruits and vegtables since that is the staple of my diet. I do not like rice or pasta or patatoes.I hardly have an appetite but when i do i don't eat much.i READ in one of your posts that you still have to explain Citrullinemia well so do i even though there is more knowledge now then there was when i was born. when the DR sends me to the er for high ammonia they allways ask me why do i think my ammonia is up and i tell them i had it tested and then they ask me if i have liver faliuer so then i have to explain citrullinemia. I live in Oregon and i am the only one with citrullinemia in my city.i am also the oldest living with citrullinemia. does your daughter eat any food by mouth? marta
Hello Marta ,Isabella eats all her food by mouth ,she mostly eats low protien pasta and rices ,low protien pizza shells & breads...she has her breakfast in the am before school,at lunch time I bring... more
Hi Lenora, i was wondering why your daughter is on so many formulas? i am only on duocal? does your daughter have problems like i do going between the runs and costipation? i tske two stool softners... more
hello Marta ,Isabella is on 3 different formulas here goes (1/3 cup + 1 tbls spoon of cyclinex 2 ,1/3 cup + 2 tbls spoons of duocal,1/3 cup + 2 tbls spoons of polycose) I mix these formulas with... more