Lease this WebApp and get rid of the ads.
Leanora
Marta
Fri Mar 11, 2011 19:11
173.252.9.74

Hello Marta ,Isabella eats all her food by mouth ,she mostly eats low protien pasta and rices ,low protien pizza shells & breads...she has her breakfast in the am before school,at lunch time I bring her her formula (polycose duocal & cyclinex 2 mixture) and add her meds into it after she is done drinking it all I know she has taken her meds I leave her go with the class to lunch I bring her dinner everyday ...she usually has low protien pasta for her lunch,now and than I can get her to eat raisins ,strawberries or even oranges ,other than that she does very well ...we get he bloodwork checked every month and fly over to St.John`s in june or july for a check up with the genetic doctor ..usually in Nov we have a tele-health conversation so we dont have to go all the way there ..with tele-health we only have to go to St.John`s once a year now instead of every 6 months and it is better for us :) hope u are doing well ...if you want to ask me anything else I am willing to write you back ...hugs :)))

Lease this WebApp and get rid of the ads.
  • for Lenoramarta, Wed Mar 9 11:01
    Hi Lenora, how are you? How is your daughter doing? i WAS wonering how YOU manage her low protien diet at school? i use to bring my own and by the time i was in jr high and high school there was the... more
    • Marta — Leanora , Fri Mar 11 19:11
      • for LenoraMARTA , Thu Mar 17 12:37
        Hi Lenora, i was wondering why your daughter is on so many formulas? i am only on duocal? does your daughter have problems like i do going between the runs and costipation? i tske two stool softners... more
        • for martaLeanora , Tue Mar 22 19:06
          hello Marta ,Isabella is on 3 different formulas here goes (1/3 cup + 1 tbls spoon of cyclinex 2 ,1/3 cup + 2 tbls spoons of duocal,1/3 cup + 2 tbls spoons of polycose) I mix these formulas with... more
Click here to receive daily updates