See the reactions I have are that I experience extreme sleepiness 30-45 minutes following a meal and it can last between 15 minutes for the most mild reactions to over 5 hours for high protein meals, I've also been experiencing an increase in symptoms following corticosteroid therapy.
I had some really, really bad reactions where I thought I'd die. I was so out of it I could barely talk, and it happened 30 minutes after eating a very high protein meal.
My entire life I've had an aversion to food but it seems to have gotten much more severe recently. As a child, I was underweight but normal. As far back as I can remember I have suffered severe brain ... more
Hi Christopher, Unfortunately it's pretty rare to be able to get diagnosed at a "local" or small hospital. Even major university hospitals sometimes do not have the expertise. It would be unusual to... more
Re: How to get diagnosed Anonymous,Mon Nov 28 02:04
Hi Vhris Sorry to hear what you're going through, the main ways of getting diagnosed r through regular monitoring of ur blood ammonia levels and also citrulline levels. The other way is to actually... more