Thank you so much Mary for your quick response to my outreach of help. I am so happy to hear that your daughter has been able to live a long life of 42 years! WOW that makes me so happy to know that one can live a long life. Is your daughter able to live a normal life .....meaning married work social life.
My little preschool is such a delightful child and I want only the best for him, and I want to do whatever it is to enhance his life while he is in my care. the g-tube...........is it used for supplemental feeds? or just meds.thank you for your time a trouble. Bonnie
Our daughter was diagnosed at 2 1/2 months. She is now 42. We were first advised to give her many foods full of carbs and sugar but I resisted. She loved popcycles and sherbert (although you always... more