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marta
6th month annivesary
Sat Dec 7, 2013 12:07
71.237.138.184

I fought with a brave face citrullinemia for 44 years and got to sick and I couldn't be kept at home stable anymore so I was in the hospital every 6 days with high ammonia so I had no choice but to be transplanted. today it is my 6th month anniversary. I miss citrullinemia and it makes me depressed. it was my friend and it's hard to live out and follow a high protein diet when I was use to a low protein for so many years. marta

    • MartaLEANORA, Thu Dec 19 10:32
      Hello Marta ,I have been reading your posts over the last few years ,and I wanted you to know that you have been an inspiration to me ,my daughter was born with citrullinemia and is the only one in... more
      • for LeonoraMary, Marta's mother, Fri Dec 20 19:56
        Marta and I are so touched by your message. Noone knows better than us what a difficult struggle this is. Marta is my hero. She has been so brave over these past 44 years. She is a blessing to us... more
        • martaLeanora, Sun Jan 5 23:21
          I am glad to hear that she is doing well with the surgery ,I just wanted her to know that she helped me cope with Isabella having Citrullinema more than she will ever know ...God Bless you all and... more
          • MartaColleen, Tue Jan 7 18:42
            You are all an inspiration to me. I am not on the site often but whenever I had a question Marta was always one of the first to answer. I found out about this site about 21 years ago. A year after my ... more
            • for collenmarta, Wed Jan 8 12:08
              colleen it must have been horrible to lose a child to otc.how old was your child? do you have other children with otc? marta
              • Re: for collenAnonymous, Fri Jan 10 12:51
                Michael died of complications due to OTC when he was eight days old at sick children's hospital in toronto. I have had two children since, Lisa is 20 and not a carrier, and Frances is 18 years old... more
                • Anonymous responseColleen, Fri Jan 10 12:54
                  Sorry Marta the last message for you came up anonymous...but it is me, colleen.
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